Originally Posted by
lag713
I We don't necessarily have reduced life expectancies.
I guess the first year is really dangerous, and the following few years. But after 5 years the mortality didn't seem to be that different from the general population.
I wouldn't be that worried about future kidney involvement, I'm more worried about the drugs not working and switching to some drugs which makes my immune system switch off and going the way annekat said. I expect to go to blood tests for the rest of my life, so any problems could be found fairly early.
Guess with the kidneys the most worrying thing is that they can be destroyed real bad before we'd get any symptoms. Someone I know with another vasculitis actually found out herself that her kidneys were bad from testing her urine in Med school (some sort of lab technician). She retested it and had a hard time to get the people from the med lab to belive her, but if she hadn't found out it might have been quite dangerous when symptoms would start to appear.
Diagnosed 08/2013, Relapse 07/2014, Relapse 5/2017 (although early signs of it from 12/2016)
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