GPA associated rash help
Hi y'all
I did a quick search here re: rashes and saw several people who had experienced them, but not if they ever eventually went away...completely.
I had 2 infusions beginning of the year and by april felt really realy good. then 2 weeks ago POOF I developed horrible angry red purple rash on thighs arms & chest. rheumy never saw rash like it assoc w GPA but biopsy confirmed it was. as well as ANCA sky high again (1100 units). Back on high level prednisone (was down to 7.5 mg) and scheduling another infusion.
I am just fearful that my skin will be permanently discolored as rash is not red anymore but lt brown.
Any firsthand rash exp most appreciated. thank you
Smile, breathe and go slowly. Because of your smile, you make life more beautiful. Thich Nhat Hahn
dxn 11/13
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