how many of us have saddle nose ?

[Alysia]

Hi,
Phil wondered about it in another thread, so I though we can "collect" that info here.
I do have it and it started about 2 years of having WG without getting proper treatment. it became more obvious after 4 such years and stopped "moving" after getting the rtx.
I only saw for real one girl with saddle nose, and she happened to be a weggie.
It makes me sad sometimes. it's another loss due to WG. but I am getting used to live with it. not sure about surgery. sounds scary

[mishb]

Nope, I don't even though the shape is changing, it hasn't saddled

[pberggren1]

I got it in 2011.

[Alysia]

Being sad about having saddle nose, Phil cheered me up with this one:
he told me that when people ask him what happened to his nose he says: "I was quarrelling. You should have seen the other guy"
Thanks Phil for that, and for allowing me to share it here

[LisaT]

Looking at your photos, I wouldn't notice it on either of you. Just a beautiful (very young looking) woman and a handsome man! I don't mean to minimize your feelings or any self-consciousness you have about it; just to let you know you still look great.

[pberggren1]

My profile pic was before the saddle nose.

[jvilner]

So far so good. One less problem to worry about

[annekat]

I have it. I went 2.5 years without diagnosis or treatment for WG, with what seemed to be just a series of ear and sinus infections. This is very common. For me, it was plenty of time for the damage to be done, and I first noticed the nose right before diagnosis; in fact it was was why my ENT was sure I had WG, and that he had goofed up by not thinking of it as a possibility. He was very apologetic, and went ahead and did a nasal biopsy, which came back positive. That was in April of 2011, and I don't think my nose has changed, even though a lot of bone erosion has gone on in my sinuses and nasal cavity since then.

[Alysia]

thanks for replying. so far: 4 have it. 4 not. we need more info.....

[LisaT]

I don't. Phil I'm sure you're still handsome. Anne, it still shocks me that an ENT could overlook the possibility of this disease! I'm glad you didn't suffer any worse damage while awaiting a diagnosis.