how many of us have saddle nose ?

[vdub]

I'd bail out of that sniffer dog training, Geoff! I've heard those guys work for food and treats. :-)

I havn't heard of a deviated septum as a symptom of wegs, but I had one. It was part of the rationale for the first operation. Interesting that you have a good sniffer now. Mine has gone the opposite direction. About half my sense of smell is gone, but I've had 3 nose operations, so that might have impacted things. Without the sense of smell, my sense of taste is gone, but the doc almost force-feeds me salt, so it all works out.

[annekat]

Not sure if I have missed something, but I have always been under the impression that a deviated septum is a syptom of Wegs?

I'm not sure about this, but I have heard that many people in the general population have deviated septums without having Wegs. My dad had one, my brother has one, and I have one, which my ENT pointed out to me way before the dx of Wegs was ever considered. I don't think that mine was terribly severe, to the point of needing surgery, but I do think that this condition will increase the incidence of sinus and nasal problems to anyone who has it, since it obstructs proper drainage and can affect breathing and proper function of the nasal passage. At this point, I have no septum, so it is no longer an issue. A disappearing septum is definitely a symptom of Wegs.

[kmac14]

Don't have a saddle nose but very big hole in septum. Docs often use the term 'ooh it's definitely abnormal' when they have a look in ears or nose. I always think to myself 'aims to please!' They love a good look around a wegeners! I always suspected that the ENT who literally straddled me and stuck a pair of pliers up my shnoz to get a chunk of it did create that big hole in my septum. Maybe not I dunno. Don't ever remember sinus issues. I am deaf so there was a lot of the ear problems and the ear pain was bad.

[Motherof2]

I had saddle nose but had it repaired two years ago. The doctor who fixed mine said mine was the worst he had seen and he said he pushed fixing it but defiantly was amazing having my nose back

[gwenllian111]

I don't have it, although my septum is deviated. x

[Bek Stone]

I have it its very pronounced its kinda upsetting and annoying

[Bek Stone]

I think you should b able to see mine in my pic just joined so still trying to work it all out

[Alysia]

if I didnt do mistakes with counting (my mind is too distracted) then 23 have it. 22 dont.
I dont care anymore about having saddle nose, because my sweet Phil, my beautiful soul mate had it, and it was heart warming to see that we shared a same "feature" outside, not only inside... pics in my profile.

[annekat]

I think you should b able to see mine in my pic just joined so still trying to work it all out

Yep, checked it out, the pic shows bigger on your profile. I see what you mean, it is a little more pronounced than many. I'm so sorry.... this disease sucks, no doubt about it. I hope you can get it fixed some day. If you can find a way to wear glasses, those cover it up quite well sometimes. But that could be tricky if you don't need glasses to see.

[Bek Stone]

Yea my specialist said theres this new thing that u can get put in thats some kind of gel thingy but ur viens grow thro it coz taking cartilage from somewhere is kinda pointless coz itd get eaten away again. But I believe the only ones of us with WG in the sinuses get the saddle nose if it's localised to lungs etc. You shouldn't get it but mines only in the sinuses atm.