User Tag List

Likes Likes:  0
Page 1 of 15 12311 ... LastLast
Results 1 to 10 of 144

Thread: how many of us have saddle nose ?

  1. #1
    Join Date
    Feb 2013
    Location
    Israel
    Posts
    4,160
    Post Thanks / Like
    Mentioned
    36 Post(s)
    Tagged
    0 Thread(s)

    Default how many of us have saddle nose ?

    Hi,
    Phil wondered about it in another thread, so I though we can "collect" that info here.
    I do have it and it started about 2 years of having WG without getting proper treatment. it became more obvious after 4 such years and stopped "moving" after getting the rtx.
    I only saw for real one girl with saddle nose, and she happened to be a weggie.
    It makes me sad sometimes. it's another loss due to WG. but I am getting used to live with it. not sure about surgery. sounds scary
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  2. #2
    Join Date
    Dec 2010
    Location
    Melbourne, Australia
    Posts
    2,751
    Post Thanks / Like
    Mentioned
    12 Post(s)
    Tagged
    0 Thread(s)

    Default

    Nope, I don't even though the shape is changing, it hasn't saddled
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  3. #3
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    6,076
    Post Thanks / Like
    Mentioned
    21 Post(s)
    Tagged
    0 Thread(s)

    Default

    I got it in 2011.
    Phil Berggren, dx 2003

  4. #4
    Join Date
    Feb 2013
    Location
    Israel
    Posts
    4,160
    Post Thanks / Like
    Mentioned
    36 Post(s)
    Tagged
    0 Thread(s)

    Default

    Being sad about having saddle nose, Phil cheered me up with this one:
    he told me that when people ask him what happened to his nose he says: "I was quarrelling. You should have seen the other guy"
    Thanks Phil for that, and for allowing me to share it here
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  5. #5
    Join Date
    May 2014
    Location
    Delta, BC
    Posts
    578
    Post Thanks / Like
    Mentioned
    5 Post(s)
    Tagged
    0 Thread(s)

    Default

    Looking at your photos, I wouldn't notice it on either of you. Just a beautiful (very young looking) woman and a handsome man! I don't mean to minimize your feelings or any self-consciousness you have about it; just to let you know you still look great.
    Just when the caterpillar thought the world was over, she became a butterfly.
    - English proverb.

  6. #6
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    6,076
    Post Thanks / Like
    Mentioned
    21 Post(s)
    Tagged
    0 Thread(s)

    Default

    My profile pic was before the saddle nose.
    Phil Berggren, dx 2003

  7. #7
    Join Date
    Feb 2013
    Location
    Israel
    Posts
    4,160
    Post Thanks / Like
    Mentioned
    36 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by pberggren1 View Post
    My profile pic was before the saddle nose.
    aww you are not less beautiful or stunning now, sweetie, trust me, I would say even more
    Batman would say: when u r hot, u r hot
    Last edited by Alysia; 06-29-2014 at 02:58 AM.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  8. #8
    Join Date
    Feb 2012
    Location
    Missouri
    Posts
    27
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I have it as well. I got is right when i was diagnosed pretty much. 2008. Its part of who we are
    Faith.Hope.Love.
    Fighting Since 2008

  9. #9
    Join Date
    Apr 2013
    Location
    Crewe, Cheshire,UK
    Posts
    98
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    saddle nose free but it has been broken a few times and has never looked very pretty.
    Mike
    If you can't be positive be optomistic.

  10. #10
    Join Date
    Mar 2014
    Posts
    128
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    So far so good. One less problem to worry about
    I am a strong person, but every now and then I also need someone to take my hand & say everything will be alright....

Page 1 of 15 12311 ... LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •