Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
I don't have a saddle nose.
I guess I was lucky being diagnosed relatively early. If my nose- and sinusproblems would have been left untreated any longer, I might have developed a saddle nose or a deviated septum.
When I look closely at my nose, the skin shows a somewhat darker spot. About two centimeters along the bridge and the sides of my nose.
I cover it up with concealer (make-up) so noone notices it.
Living with WG/GPA since june 2010...
I have a saddle nose too.
Speaking of deviated septums, a certain, not small percentage of the population has them. My dad had one, my brother does, and possibly most of my family. Not extreme cases, maybe, but deviated all the same. My ENT mentioned mine when I was having all kinds of sinus issues pre-Wegs dx, but didn't act like it was a big deal or needed to be corrected or anything; he sees them all the time, I'm sure. It is, however, another big reason for delayed dx; we just look like half of their patients do anyway. There were no noticeable changes in my nose before the saddle occurred.
Anne, dx'ed April 2011
counting: 9 have it. 7 not.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Make that 8 without... saddle nose is one of the few things I don't have
Nothing can break you; you are much stronger than you think... look at what you've already survived.
I have to admit since I've been diagnosed it doesn't bother me as much , still hate it but understand it . And in a way grateful for it : if my dog hadn't knocked it maybe I'd have gone longer before diagnosis ?!
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I have a deviated septum from a broken nose in my teens but no evidence yet of saddle nose despite several sinus and ear infections. I did have all the other common symptoms of GPA.
Last edited by drz; 07-07-2014 at 01:49 AM.
Knowledge is power! Wisdom is using it to make good decisions!
9 have it. 9 not.
I am counting each time because I am not so good with numbers
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
I do not have saddle nose.
I am a strong person, but every now and then I also need someone to take my hand & say everything will be alright....
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