I have it. I went 2.5 years without diagnosis or treatment for WG, with what seemed to be just a series of ear and sinus infections. This is very common. For me, it was plenty of time for the damage to be done, and I first noticed the nose right before diagnosis; in fact it was was why my ENT was sure I had WG, and that he had goofed up by not thinking of it as a possibility. He was very apologetic, and went ahead and did a nasal biopsy, which came back positive. That was in April of 2011, and I don't think my nose has changed, even though a lot of bone erosion has gone on in my sinuses and nasal cavity since then.