how many of us have saddle nose ?

[Alysia]

thanks Yvonne for sharing here. (I also got PM). its important info. although I am too afraid to use it.
thanks Greg for your kind words

[LisaT]

Hi Miranda. I am extremely proud that you all can deal with the saddle nose so well. I wish I had been. I think I had it for awhile, my nose was changing. It was very long and so it wasn't that noticeable. But it was to me. But the day I literally woke up, and it was totally flat! I think I slept on it funny on my pillow, or something, but it just kind of completely "fell" into my face. I don't think I was really caring how I looked as much as it cut off my breathing so much. But I am not sure what the Dr. used in the second surgery to hold my nose up. Someone had mentioned that "plastic" would cause a flare. So I am sure he used something that plastic surgeons use that our bodies will not reject. So far so good! Everyone on here that has saddle nose looks great! I wouldn't do it unless it was interfering with your breathing. Oh, Mom and I got our Wegerners Shirts yesterday! It has the red ribbon on the front, and all the symptom on the back. It is so nice! The shirt itself is of great quality! Its thick T-shirt material, not thin. For only $10. its a great way to spread the word about our dz! Love yall, :-)

Lilly, you look beautiful, and breathing is definitely high up on the list of priorities, so I'm glad you had the procedure. Do you have a link to where you ordered the short from? Or a photo?

[LisaT]

Thanks, Yvonne. Now I might not hesitate to get it again, except for the price. Also I was told when used to fill wrinkles it should last six months to a year and it didn't... I'm glad it's working for you although it would be nice if it lasted longer. Shouldn't the cost be covered by health care or health insurance if it restores breathing and is not for cosmetic reasons alone?

[Dirty Don]

Lisa, I had to 'fight' for coverage of the synthetic filler the ENT put in my Eustachian tube to rebuild it. Insurance company claimed at first that it was cosmetic...really? It was IN my E tube...sheesh. Anyway, doc did insist it was necessary as nothing else may work...well, it didn't work, but the insurance company paid anyway at the doc's insistence...YEA...got one on the insurance company!

[annekat]

Lilly, your nose sounds like it was a lot worse than many of ours. So of course you needed to do something about it. And I agree you look beautiful in your pics.

[Alysia]

Lilly, your nose sounds like it was a lot worse than many of ours. So of course you needed to do something about it. And I agree you look beautiful in your pics.

I echo the others: Lilly, you look beautiful I wouldnt have guess that you did any surgery to your nose

[vdub]

Put me down as a "no saddle nose".

[Alysia]

counting so far: 7 have it. 6 not.

[Jayne 14]

I have saddle nose - and hate it
When I can & the docs say they can I really want it doing .
I try to avoid pictures or lean to 1 side to minimise it



Sent from my iPad using Tapatalk

[annekat]

I have saddle nose - and hate it
When I can & the docs say they can I really want it doing .
I try to avoid pictures or lean to 1 side to minimise it



Sent from my iPad using Tapatalk

Some saddle noses are worse than others, though none of them are pretty.... I'm very sorry that yours is as bad as it sounds, Jayne, and wish you great success at getting it approved and done as soon as possible.