how many of us have saddle nose ?

[Psyborg]

No Saddle nose here either. But I have basically minimal sinus involvement.

[Fran]

In the first 12 months of being diagnosed, my nose became so swollen and painful I could hardly bear to wash my face, but it eventually it calmed down and, surprisingly - no saddle nose.

Fran

[lag713]

I have sinus involvement including nasal and facial pain but I do not have any signs of a saddle nose. My fingers are crossed that it won't become an issue. I'm making note of all the advice from those who have done it just in case!

[Alysia]

wow, we are "beating"the saddle nose: counting so far : 13 don't have it. 9 do

[Gragnoc]

I have sinus involvement including nasal and facial pain but I do not have any signs of a saddle nose. My fingers are crossed that it won't become an issue. I'm making note of all the advice from those who have done it just in case!

lag713,
Have you ever experienced any sneezing fits followed by bleeding?
Greg

[lag713]

I used to occasionally have some blood in my tissues a couple of months ago but no nose bleeds or nasal crusting. When I sneeze, I sneeze 2-3 times in a row but nothing like a fit of sneezing. My allergies are typically red, watery eyes and a runny/stuffy nose with the classic allergy haze.

My ENT did an endoscopy a few months ago and said everything looked good. The nasal/facial pain may be related to inflammation caused by wegs and allergies. He offered to put me on prednisone (I'm only taking mtx right now) but when we discussed the pros/cons it seemed like I would prefer staying away from pred for now. My nose has been a bit sensitive of late so I plan to ask about getting a sinus CT to see if there is anything visibly going on.

[Sukriti]

Hi, I've been diagnosed with Weigners four surgeries down after being sick for nearly a year. And got a saddle nose. How long does the disease take to go into remission? I live in New Delhi, India.

[mishb]

Hi Sukriti and welcome to the forum.
I'm sorry that you have been diagnosed with WG but I'm glad that you are here.

It's hard to now how to answer your question without knowing the history and the medications that you are on.
Remission is a tricking thing. Some find themselves med free within 12 months and others are still going after many many years.

Take some time and read some stories in Member Introductions etc. and maybe (when you feel able), you can add your own story.

We look forward to hearing more from you and learning of your journey so far

[Sukriti]

Hi, thanks for welcoming me, means a lot 😃. I've been on steroids for the last 10 months n chemo for 6.5 months. Now I'm currently on 5mg a day n on Azoran 100mg a day which doc said will continue for a year +.. This forum is so enlightening, thank you whoever started it 👍

[mishb]

Already on 5mg of steroids is a great sign. I hope they have made you feel more human and less .....blah

Yes I agree, it is a great forum and you will find someone on here any time of the day - which is awesome