how many of us have saddle nose ?

[Yvonnea]

I have it. Got it in 2011 (7 years after dx). Don't plan on surgery as "luckily" mine was not so bad and did not affect my breathing etc. Have got restylane fillers to correct it cosmetically, and am very happy with results.
I am surprised Lilly that they used plastic in your surgery. I always thought this was not done as it could cause a flare. Anyway, glad that you are happy with the results. It looks great in your pic :-)

[chris.wg]

No saddle nose though the ent says I have a mildly deviated septium and several senecia <spelling> formed in my sinus cavity. That causes its share of issues with breathing especially when I wake up with a full sinus that I have to try to clear out around them.

[annekat]

No saddle nose though the ent says I have a mildly deviated septium and several senecia <spelling> formed in my sinus cavity. That causes its share of issues with breathing especially when I wake up with a full sinus that I have to try to clear out around them.

Does the ENT say your deviated septum is caused by Wegs? I have heard a few on here talking about their noses becoming crooked, but not saddled. I already had a mildly deviated septum, as do most in my family and, I have read, quite a few people in the general population. It wasn't causing me much problems with breathing, unless things got totally clogged, and neither does my saddle nose. Just curious if this is another side effect of Wegs; seems like it could easily be.

[chris.wg]

Does the ENT say your deviated septum is caused by Wegs? I have heard a few on here talking about their noses becoming crooked, but not saddled. I already had a mildly deviated septum, as do most in my family and, I have read, quite a few people in the general population. It wasn't causing me much problems with breathing, unless things got totally clogged, and neither does my saddle nose. Just curious if this is another side effect of Wegs; seems like it could easily be.

He never said the ent was kind of 2ndary in my treatment locally. I see my first visit to the University ENT in a few weeks I will ask his opinion. I always guessed I did after something at work almost 15 years ago because shortly after that breathing thru my nose felt a bit strained but the more I learn about WG for all I know that could have been when it first started showing and knowing nothing about it I attributed it to the work issue.

[LisaT]

No saddle nose though the ent says I have a mildly deviated septium and several senecia <spelling> formed in my sinus cavity. That causes its share of issues with breathing especially when I wake up with a full sinus that I have to try to clear out around them.

I also have a deviated septum and very narrowed nasal breathing space whatever that's called, with "adhesions".

[Alysia]

I also have a deviated septum and very narrowed nasal breathing space whatever that's called, with "adhesions".

I also have "adhesions" deep inside.
counting so far: 6 have it. 5 not.

[windchime]

I also have a deviated septum and very narrowed nasal breathing space whatever that's called, with "adhesions".

I have a deviated septum too and now I have some bony growths, but ENT says I don't have wegs in my sinuses.

[annekat]

I have it. Got it in 2011 (7 years after dx). Don't plan on surgery as "luckily" mine was not so bad and did not affect my breathing etc. Have got restylane fillers to correct it cosmetically, and am very happy with results.
I am surprised Lilly that they used plastic in your surgery. I always thought this was not done as it could cause a flare. Anyway, glad that you are happy with the results. It looks great in your pic :-)

I have always read on here that any type of artificial fillers or plastic are not good in saddle noses with Wegs for the possible flaring problem. I don't know what restylane is, though, and would like to know more. Probably the only way I could ever afford to get mine fixed would be with a filler type of method that doesn't involve surgery. I have no problem with breathing, it would just be cosmetic. And as for using cartilage, I've heard of several on here who have not had the new cartilage eaten away and have had good results with that. I'm sorry that didn't work for you, Lilly, but glad the plastic does make you feel OK about your nose. It looks good in your pictures.

[Alysia]

. Have got restylane fillers to correct it cosmetically, and am very happy with results

thanks for sharing what are those ?

[LisaT]

thanks for sharing what are those ?

restylane is a filler like botox that is injected, at least when it's used as a wrinkle filler. I'm not sure what the procedure is to fix saddle nose. I tried it once for the deep line from nose to outside of lips. (has a weird name like nasolabial fold or something like that; I call them jowls…) It worked well at first, then seemed to lose the effect way sooner than it was supposed to. I normally don't do and won't do any sort of cosmetic surgery or injections; decided to try that one because a friend of a friend was bringing her supplies and doing it at a friend's house for a group discount. Couldn't resist as the 'jowls' bug me. I've since decided to live with them like everything else that seems to be changing. I feel like my immune system has enough to manage without injecting unnecessary foreign substances. (Totally different considerations when it's for reconstructive purposes; I can understand wanting to fix saddle nose. For me, the wrinkle stuff seems like too much toxicity for vanity's sake.)