Hello from Perth Australia

[Beverly]

Welcome Mal...don't know what I can add to what everyone before me has stated. I believe you will be a good caretaker, and it was hard for me to see my husband have to go thru this with me. You may already know that your wife needs an advocate when in hospital or at docs visits.
As others have expressed, you have come to a good support forum
The short time that I have been here has truly been a wealth of valuable information and great blessing. This is my prayer for you and your wife.
Bev

[Alysia]

welcome to our family, Mal
I understand what you are going through and how sad and shoking and scary it is for you
I feel that it is more tough to be the caretaker of a weggie then to be the weggie.
but you are in good hands, ours - here - and at the hospital.
if Michelle confirms it, then - no doubt that it is a good one
I hope that your wife will continue to feel better more and more, and will be soon at home, by your side.
take care of yourself as well.

[maldugs]

Thankyou for your thoughts, and advice, I have my wife home after 3 weeks in hospital, we are going back today to see her specialist, she has a puffy face due to prednisolone, but she is taking around 20 other tablets and capsules also, she can't walk very far, and is quite tired, will be interesting to see what the doctor says.

Mal.

[annekat]

I'm glad to hear she is home. The fatigue and not being able to walk far is very normal at this point. With continued treatment, she should feel quite a bit better in a few weeks. Keep us posted!

[chris.wg]

Hi Mal I am sorry to hear about your wife. Every new member to this forum dose 2 things for me emotionally. First saddens me and makes me think not another..... But it also makes me glad that this forum is here it is a excellent source of knowledge and support. We have all had our personal issues with WG but if you browse you will learn we also celebrate our triumphs.

[RonB]

Mal

I too am from Perth with exactly the same problems, it's been 9 months for me and I came off Kidney dialysis after 5 months.
Tell her to hang in there, you think things will never improve, but eventually they do.
I am under the care of Doctor George Chin at Fremantle and he has been great.
Long term it probably depends on how early they diagnosed it
Good luck
Ron

[mishb]

Hi Ron,

Gosh us Aussies are starting to catch up with the rest of the weggies on here

Fremantle hospital is an excellent hospital and know all about WG/GPA, unlike my local hospital who even asked me how to spell it for their records

We would love you guys to join our facebook Aussie Group, if you are on.

[mishb]

Mal,

I'm glad you wife has now come home.
Things will get better, I promise

[BookNut]

So glad your wife is home. I hope that she will also join the group. Great bunch of people. I was briefly diagnosed with Wegeners but it was ruled out....but not before I got hooked on this forum. Lots of good friends with great advice on dealing with the respiratory problems that I have. It would be great for her to join, and find out that she can ask ANY question here, and there will be someone there to answer her questions from their real life experiences. So helpful!! Good luck as both you AND your wife recover from the hospital stay! I know what it is like. You just can't wait to get home where you can finally get some rest! Hospitals are anything but a place to get much needed rest!

[maldugs]

I think my wife is feeling the effects of all the meds she has to take every day, the specialist siad the meds will be slowed down eventually, I will list what she is taking for your comments :_
Daily. magnesuim, Asprin, Atorvastatin, Thyroxine,Pantoprazole, Amlopidine, Calcitrol, Calcium Carbonate, Cylophosphamide, Frusemide, Predisolone, Sodium Bicarbonate, Sulfamethoxazole, Valganciclovir. She throws up most mornings, NO Wonder!!! but then she takes all the medication, and can eat ok.
All we can do is keep going I guess.

Mal.