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Thread: Wegeners cause on facebook!

  1. #1
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    Default Wegeners cause on facebook!

    Hi Everyone! I just created a facebook page to support research for Wegeners! I have chosen the Research Center at the cleveland clinic as the beneficiary for the cause, as this is one of only 5 facilities in the US that specializes in our disorder. Please take a moment to join the group, and if you can, make a donation! Spread word to all your friends to help me reach my goal of $500 in donations by January 1st! Thank you!
    Causes on Facebook | Wegeners Granulomatosis Awareness & Research
    Georgia In Ohio... On a Mission for Remission!

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    wow, i was really hoping this would get a bump! oh well, ive had 22 new members join this week. I also have a link to this forum posted so hopefully there are some new members here from facebook. Hope to see some faces from here on the Cause! Im also taking donations for the Cleveland clinic research of WG thru the Cause on facebook! Everyone is welcome! Please Join!
    Georgia In Ohio... On a Mission for Remission!

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    I suspect it may be that there are already quite a few established WG and vasculitis groups on Facebook and people may be reluctant to take on more in terms of participation. Keep up the fight!

    Best wishes

    Martin
    Cumbria
    UK

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    I'm not on FB. I just can't do more computer stuff at this point!

  5. #5
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    FB is a mystery to me too.

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    Hey thanks for this I have just joined

  7. #7
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    I use Facebook all the time. Its a great way to keep in touch with friends and family. Since I posted the info from Georgia about the Facebook page 6 or 8 of my friends have joined the cause. I think it was a great idea!! Thanks Georgia!

  8. #8
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    Well done Georgia! Pay day in four days and I'm chucking in then!! W000000!!!
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

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