Father needs a good doctor in Arlington, TX

[nunciate]

My father was diagnosed with WG about 4 years ago. At the time he had may symptoms including failing kidneys. After almost a year of misdiagnosing individual symptoms he was finally diagnosed with WG. Unfortunately by the time the got the diagnosis right he had already lost kidney function. He has been on dialysis ever since.

His current doctor seems to be treating the symptoms rather than the disease even though he is the one who diagnosed it. The doctor gives him medicine for his sinus issues and joint pain. My dad has been unable to eat well for months now and has lost a lot of weight. He feels sick after taking a few bites so the doctor gave him anti-nausea pills and ordered CT scans which show nothing. They say his blood work is fine. They want to do upper and lower GI's to see if there is anything wrong.

This all sounds completely wrong to me. He has WG so why aren't they treating that?

If anyone has a reference to a good doctor in the Dallas / Fort Worth area I would greatly appreciate it. My parents live half way between Dallas & Fort Worth in Arlington, TX. Somewhere close would be nice but any doctor would do as long as they know what they are doing with WG.

[Alysia]

welcome to the Forum. I am so sorry about your father, going through such tough times without correct treatment. I guess someone around here will soon come and recomand a doc. I love too far away....
what treatment is your father getting ?

[nunciate]

Currently he is getting no treatment that I am aware of. Just a couple of doctors trying to treat the various symptoms. Giving him hydrocodone for the pain and dialysis for the kidney failure. He rarely takes the pain meds though. They make him feel too tire. I think he is on some other medications but nothing that is specifically to treat WG. He is very weak and has trouble even getting into the shower. The doctor is going to get him some in home care.

[Alysia]

oh. no treatment is a bad neglect of the docs untill someone with more info will come, check at the Vasculitis Foundation Vasculitis Foundation

[renidrag]

Get someone soon. The only place that comes to mind is Cleveland Clinic in Ohio. Many on here go there. Please go to Vasculitis foundation and find someone as Alysia has said.
Dale

[Pete]

If either Cleveland Clinic or Mayo Clinic has a center in the Metroplex, I would take your Dad there. The docs at the local center can consult with specialists at "home base". Your Dad needs competent treatment yesterday. Please don't delay further.