Waiting Again

[Juliesjewels]

I have not officially been diagnosed with WG yet because two nasal biopsies were negative for granulomatosis & my rheumy won't give me any meds except prednisone until I have a freaking positive biopsy from some place in my body. But my point is I sweat buckets at night to the point where I can't turn over easily bc the sheets stick to me!!! I can feel beads of sweat running down my face & head each night. In the day if I walk more than a block I'm sweating buckets. It's extremely embarrassing!!! It's not the prednisone making me sweat. I was sweating before my first dose of pred. It's this terrible disease making the night sweats!


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[Michael Bell]

Hi Julie, I was also suffering from night sweats before diagnosis, sometimes so bad we had to change the sheets. These stopped when I was put on full medication and it is over two years now since this was a problem. I hope you are sorted soon and can put this behind you.
Mike

[annekat]

I agree it is the disease and not the meds. I had the sweats big time before diagnosis, and they ended with treatment. Now I only get them if the Wegs dog is trying to wake up or I'm in an actual flare and need to increase my meds.

[Ellie]

Hmmm, so these hot flushes might not be menopause...

Not sure how I feel about that to be honest. I'm right in the age range for it (because I had a hysterectomy at 29 the blood supply to my ovaries is reduced so typically menopause occurs a few years earlier).

But...if it IS menopause, when it stops it's over. You don't do menopause more than once...it's a bit like puberty (thank goodness!). If it's GPA and it goes away (with treatment, or just cos)...it might come back.

Think my vote is for menopause...I may be the only woman ever to have said that...

[windchime]

Bad news is although menopause goes away, the sweating which may or may not be wegs/meds related may stay. I've talked to may women that say they are consistently hot now, post menopause. Obviously this doesn't happen to all women and I pray each of you get through it with a minimum of misery.

[annekat]

Bad news is although menopause goes away, the sweating which may or may not be wegs/meds related may stay. I've talked to may women that say they are consistently hot now, post menopause. Obviously this doesn't happen to all women and I pray each of you get through it with a minimum of misery.

Guess I'm lucky, my menopause sweats are gone. I remember them as being worse than the WG night sweats. But everyone is different.

[Ellie]

Bad news is although menopause goes away, the sweating which may or may not be wegs/meds related may stay.

See that's my point...if it is menopause, and it goes away, tis gone...if it's GPA it might come back. So still voting for menopause as my preferred option...

[OJSRLS]

Hey DD just got latest blood work and once again I have a positive ANCA but other than the profuse sweating show no other signs so right now I'm on no Meds. Dr said with nothing to Biopsy does not want to start a round of unpleasant drug regiment. Does anyone know if Wegeners can be systemic? My blood work also showed MCH and MCV were low. I have app. with family MD on Mon. I will be setting an appointment with a Wegener's specialist in Kansas City KS to hopefully find some answers.

[OJSRLS]

I can relate to what you're saying. My Rheumy won't give me Meds with nothing to Biopsy. But I also sweat to the point of embarrassment. I am hoping a Wegs. specialist in Kansas City may be able to help.