This will be a rant...
My kids are about to be out of school a few weeks early due to a teachers' strike. I totally support the teachers, but it will be very inconvenient given that I don't have the energy to keep up with them all day, they fight constantly right now, and these were the few weeks to get everything wrapped up and finish making plans for my son for the summer (day camps to run him all day because he needs soooo much activity that I can't provide), and to get my daughter ready for sleep away camp.
My headache is back so badly I can't even really read to do all of the paperwork things I need to do, and I promised my daughter various errands today and need groceries. I feel like I keep letting everyone down and there's no point making any plans ever. But there's nothing I can do about it at the moment but meditate and walk the dog in the hopes that either or both of those things can help, and try to book my babysitter for after school in case they don't. If i have to i can also send her to the grocery store. This SUCKS! I know so many people have it so much worse and I'm fortunate in many ways. I just had to whine for a moment and get it off my chest. I had a break from the headache yesterday and it made me hopeful… maybe the walk will help again as it seemed to yesterday. I've booked appts with my GP and ENT this week (rheumy away and I've been feeling as though he doesn't take me seriously enough), to try to make sure I don't have Wegs in my head. I hope the fact that the headache comes and goes and is alleviated by massage, heat etc. is a good sign that it's my usual stuff and not Wegs in my head, but better safe than sorry. Unfortunately getting an MRI is a long wait here… If it is going to be too long I might look into paying privately. Does anyone else worry about all the radiation of all these scans? i guess it's the lesser of two evils… I'm hoping maybe the ENT will consider putting me on Rituximab as my rheumy doesn't seem to think it's necessary but I'm clearly not in remission, if these symptoms are indeed from Wegener's.
I wonder what age my kids will gain enough empathy to understand rather than get upset with me for what I can't do for them when I don't feel well. It took their father a few years… he's become more understanding and supportive as time goes on.
Sorry for the rambling rant! One of those days. Hope everyone else is feeling okay!
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