Here is my story of how it all began my mother wasn't feeling her best for months and of course her family practitioner said it was her potassium well April 15 she went to the hospital after being in the bed for two weeks she was told she had pneumonia which she did then by the next morning the antibiotics were still not working so they tried several different ones still nothing and she started to get worse they put her on a respirator . The next morning one of the Doctors told us we had to transfer hospitals because there was much more going on and she needed to be at a better hospital that was more equipped for her situation to find out what was going on or we were going to loose her .so we had her transferred right away . ICU in the new hospital the Pulmonologist and nephrologist were baffled why nothing was working so over a week almost two of blood test and cultures sent off to California finally one of the test showed this rare disease Wegeners Granulomatosis we were all terrified as my mother so close to death they started treatment of cytoxin immediately and prednisone . The the antibiotic finally started working to kill off the pneumonia .
Her kidneys were being watched very closely and all of this went on for 2 more weeks . Thank you lord she pulled through she is just now after 6 weeks out of the hospital still doing rehab and treatments every two weeks and slowly getting strength back her muscles still weak but getting better !This is the most scary thing she or our family has ever had to deal with . Of course so many details to go along with all of this but ,I'll say we are so Blessed to still have her and learning more about this as we go along . So now I've moved my parents here to Alabama with me and in the process of their transferring . Thank you for allowing me to share bits. Of our journey (:
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