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Thread: Flu vaccines

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    Default Flu vaccines

    Should I get the flu shot or is that a bad idea with WG

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    This question has been asked a lot and you will get a variety of answers. My personal experience is "no problem", Just make sure you get the dead virus variety. I believe the nasal spray is a live virus, but always ask and make sure.

    My take on it is that we are already immune-suppressed and anything we can do to bolster us from getting the flu is a big plus. I was also advised to get a shingles shot, which I did, and I didn't have a problem with that either.
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
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    I'm with Vdub on this one. I've had the flu and pneumonia shots with no problems. If you search the archives you will find some lively discussions regarding this topic.
    Cindy



    Earth is just a stopover and whatever you achieve there is only a small part of the deal. The Afterlife Of Billy Fingers


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    Yeah its exactly what I was thinking, just. Wanted to know what others thought

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    The shingles vaccine is a live virus vaccine generally given to people over age 60. I would check with my wegs specialist before having a shingles shot. I got my shot several years before I got wegs.
    Pete
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    Quote Originally Posted by Pete View Post
    The shingles vaccine is a live virus vaccine generally given to people over age 60. I would check with my wegs specialist before having a shingles shot. I got my shot several years before I got wegs.
    I was told that while I am on immune suppressants, under NO CIRCUMSTANCES should I have ANY kind of LIVE vaccines, especially the one for shingles. With a compromised immune system, teh live virus could cause you to get what you are trying to vaccinate for.
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


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    I will keep this in mind, thank you

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    Since I was diagnosed with WG, my doctor told me not to take the flu vaccine any more. If you have a WG doc they will probably tell you the same. If you ask someone not familiar with WG, they may not.
    J. Mike Milliorn, Santo Texas
    Diagnosed Jan. 2011
    at the Cleveland Clinic

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    Yeah its kinda what I was thinking, the doctors at OU said no more vaccines, but I was only the third person with WG they had ever seen.

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    That's pretty scary, Shawn. Only three WG patients? You should really consider seeking out someone who sees many WG patients as your primary quarterback for treatment ongoing. Even better is someone who sees only WG or vasculitis patients. You've got a lot at stake here. Don't take a chance on an inexperienced physician no matter how competent they are in their specialty field if they aren't very familiar with WG.
    J. Mike Milliorn, Santo Texas
    Diagnosed Jan. 2011
    at the Cleveland Clinic

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