My name is Shawn

[Jayne 14]

Welcome Shawnee
I'm brand new too
Diagnosed April 2014
You've come to the right place , I hope you feel better soon
I'm sure stress doesn't help this illness but kinda hard not to stress when you're adjusting to new life / money issues !!



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[sbeach78]

Thank you

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[sbeach78]

Jayne 14 I hope your doing better now.

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[Mike_Milliorn]

Ask Phil about the kidney biopsy. He has info for you. Still think you need a specialist to quarterback all these various body part specialists. Too many cooks in your kitchen. Too dangerous for you.


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[Jayne 14]

Thanks
I'm really tired today, think its time to acknowledge I may have to slow myself down a bit . I'm ordinarily full steam 100 miles an hr , working part time in M & S , mum , wife etc and am nailed this weekend
Glad I know what / why my nose is destroyed / no smell / huge crazy things coming from it / bad gums / raynaulds etc etc but would like my old self back
I'm not 1 to enjoy fuss / are u ok so find it odd to have to ask
I will be fine I know I will : it's just a lot to process


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[KimH]

Hi Shawn, welcome to the forum. This disease takes us on quite a journey. The support and understanding that you will find here is unsurpassed! I hope you start to feel better soon. It is hard to be patient when you get hit with so much. Someone is always here for whenever you need to talk.

[windchime]

Thanks
I'm really tired today, think its time to acknowledge I may have to slow myself down a bit . I'm ordinarily full steam 100 miles an hr , working part time in M & S , mum , wife etc and am nailed this weekend
Glad I know what / why my nose is destroyed / no smell / huge crazy things coming from it / bad gums / raynaulds etc etc but would like my old self back
I'm not 1 to enjoy fuss / are u ok so find it odd to have to ask
I will be fine I know I will : it's just a lot to process


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One day at a time Jayne. Be gentle with yourself.

[sbeach78]

Hi Kim and thank you for the welcome...

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[godgirl]

Welcome, Shawn. I'm pretty new on the forum as well. Tons of information and a great group of people. I'm not quite diagnosed yet, but my docs are treating it as if its Wegs. Otherwise I flare with what they're calling "connective tissue disorder".
I also hear you about the breadwinner thing. I'm divorced and its only me and the dog. I have to be able to support myself and that scares me.
I hope you get to feeling better soon.

[sbeach78]

Well I hope it gets better for you. I know if it wasn't for my family I would starve along with my dogs...my wife brings home the Bacon now.

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