I would just add, give very specific details of what you can and can't do and for how long, eg, sleeping x number of hours plus napping in the afternoon, routines required for managing your symptoms (example tell them if you need to rinse your sinuses and use a nebulizer twice daily for total two hours), sitting in a warm bath or going for physio or whatever else takes your time and energy to manage your disease, how frequent are your appointments etc. they look at functional abilities and daily routine... When they see that after adding up everything the disease 'takes' from your day, there's not much of it left, it is harder for them to deny. I don't know how the system works in Israel, but here many people are initially denied and then succeed on appeal. In addition to sending the reading material you could tell them clearly that vasculitis is not temporary and you can expect to deal with it for life. In case they don't read the attachments. Sorry you have to go through this! It's stressful having to try to prove your illness... I hate it. You feel guilty as though you're making bit up or being lazy. They should feel guilty for causing ill people more stress.
Last edited by LisaT; 06-04-2014 at 12:52 PM.
Just when the caterpillar thought the world was over, she became a butterfly.
- English proverb.
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still I was angry
and started to write my appeal, which I can submit in 60 days.
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Originally Posted by Alysia
Jacquie (aka Lifelong Booknut)
I knew I can count on you. 
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