Through the Vasculitis Foundation I've gotten in touch with two women who run a support group in British Columbia, Canada! There are 18 people and of course, my first question will be whether they know of and recommend my rheumatologist and ENT and who I should see for a second opinion and treatment options. I forgot to ask if they're okay with me posting their contact information. I'm sure they will be but I will check with them and then post it. One of them is my age and lives not too far from me! And has offered to meet with me in person. I'm so happy and relieved to have found them! And yet, it made me cry. Very emotional these days.