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  1. #1
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    Default I found a support group!

    Through the Vasculitis Foundation I've gotten in touch with two women who run a support group in British Columbia, Canada! There are 18 people and of course, my first question will be whether they know of and recommend my rheumatologist and ENT and who I should see for a second opinion and treatment options. I forgot to ask if they're okay with me posting their contact information. I'm sure they will be but I will check with them and then post it. One of them is my age and lives not too far from me! And has offered to meet with me in person. I'm so happy and relieved to have found them! And yet, it made me cry. Very emotional these days.

  2. #2
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    now that you have your group, and that you have us, you are more free to cry
    maybe sometimes the tears are just waiting untill one is less lonely as before....
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  3. #3
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    That's great news! Support and understanding are sometimes undervalued when dealing with a disease like this. Let us know how you get on.

  4. #4
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    Looking forward to attending the West Central Ohio Chapter Vasculitis Foundation Support Group on Wednesday. Hope to see some of the Ohio members there as well. Will be my first time attending a formal support group.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  5. #5
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    There are a few from this forum that live in your area Lisa.
    Phil Berggren, dx 2003

  6. #6
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    Great news Lisa. The support you need is there when you need it!!
    Cindy



    Earth is just a stopover and whatever you achieve there is only a small part of the deal. The Afterlife Of Billy Fingers


  7. #7
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    Hi Lisa
    I am new to the group just as of now. I am waiting for more testing to confirm GPA, but told I most likely do have it. I live in British Columbia, Canada also Not sure what area you are in. I live in Surrey BC..if your close to me please do let me know.

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