I found a support group!

[pberggren1]

There are a few from this forum that live in your area Lisa.

[windchime]

Great news Lisa. The support you need is there when you need it!!

[annekat]

That's great, Lisa! Meeting and getting support from other Weggies near one's home is hard to beat. We truly are a bunch of kindred spirits in many ways. And I hope, hope, hope, that you can get hooked up with some good docs and can get the diagnosis and treatment you need, soon!

[LisaT]

Thank you! Crying again. Sheesh! I'm going to end up just a big puddle. Looking forward to some visits from family coming up, which should also help a lot. My hubby's sister this weekend, then my mom for a week (she will come with me to results of a breast biopsy (haven't even mentioned that issue yet), and the gated chest Ct, all in the same morning! She's been planning to come visit, and she and my dad just returned to calgary from their winter in Scottsdale. When I found out both of those results were scheduled for the same day I left her a vm saying she needed to be here for June 2nd. I've done enough of this on my own, now I want my mommy! Waaaaaahhhh! Oh, and my sis from Seattle will come either in between SIL and mom, or after mom. We always have fun together. She has a lot of similar symptoms to my earlier ones, and chronic sinus infections and ear pain... I'm worried about her and told her to get her doc to check her bloodwork for inflammatory markers and ANCA. But that's another issue.

[LisaT]

That's great, Lisa! Meeting and getting support from other Weggies near one's home is hard to beat. We truly are a bunch of kindred spirits in many ways. And I hope, hope, hope, that you can get hooked up with some good docs and can get the diagnosis and treatment you need, soon!

Now THAT was the response I was looking for at home this morning!

[Geoff]

Loving this thread as itz close to my heart. Meeting fellow Weggies has been a life affirming moment in my life.

[annekat]

I have just gotten a PM from a new forum member who actually lives in my town. More later on that, as we progress in our communications. Very exciting!

[LisaT]

Hi all, I've been MIA here for too long and just popped in to tell y'all something and can't believe how much I've missed. I will try to get back here more often! I'm headed to a Lower Mainland (British Columbia, Canada) support group dinner In a couple of hours! And I'll be meeting Christina, who has come over from Victoria (on Vancouver Island) with her hubby. Hoping to also see another mom from our school (can't believe another Weggie in our tiny little school) who was diagnosed this past year and been through a very rough ride. I will try to get a couple of pics and let you all know how it went. There will be a guest speaker who is a new vasculitis specialist starting a practice in town. She's speaking about maintenance therapy and a new trial. I'll post whatever I learn. Excited to see some real in-the-flesh weggies again! (And have kid-free dinner cleaned up by restaurant staff.. That's always high on my list of things I enjoy. ) I hope everyone is feeling as well as possible and I will be back soon!