My boyfriend recently went to Canada, he brought back this story. News on genetic confirmation and new foundations have been established!
My boyfriend recently went to Canada, he brought back this story. News on genetic confirmation and new foundations have been established!
Experience is the only way to survive. <3 Rini Orange
Wow wow wow...very cool!
Knowing how to think empowers you far beyond those who only know what to think. -NdT
Yeh, now we really are special and maybe have two rare genes to prove it.?
Knowledge is power! Wisdom is using it to make good decisions!
Pretty important step forward... Thanks, Rini.!!!
Last edited by vdub; 05-13-2014 at 04:24 PM.
Wegener's (GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017, Hypoparathyroidism - 2017. (my story)
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I wonder what this means.
Phil Berggren, dx 2003
Did they use your DNA Phil??
How many from here I wonder participated in the study with Dr Merkel and are part of these DNA strands.
If you participated, did they every or do they ever, tell you the results of your samples ie. that you have these 2 specific genes or not?
Wow, this is very interesting
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
I sent a sample to Dr Siminovich shortly after I was diagnosed. I've heard nothing since.
I'm like Phil -waiting to learn more and understand what it means.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
I donated in Boston through Vasculitis Research Council, that was through Mass General and also donated at Boston Medical, they were working with Merkel. I don't think they update you, had to sign a few forms releasing my DNA and giving them permission to use it. Thanks, Rini.
Dale
Dx Aug, 2009 Remission June 2010 until 8/1/2014
I agreed to participate in some genetic study and Mayo just forwarded some part of my blood I guess. It was a one time event. The longitudinal study on treating GPA patients is on going and long term. There are several collection points but the data and lab samples are forward to Merkel I believe. I think the vasculitis foundation has info on most of these studies.
Knowledge is power! Wisdom is using it to make good decisions!
Great stuff, Rini, thanks for sharing. (Just figured out how to make it come up in the correct "reader" utility so I could read it!)
Anne, dx'ed April 2011
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