Hi Joanne, I try to catch up with the posts on here every Friday - ( it's a really great forum by the way ), but I do not post usually, as I am not very eloquent unlike many of the caring, compassionate folk on here. But, I was very upset by your post !
I was finally diagnosed in 1998 and live in East Anglia so I cannot help with recommendations as far as doctors are concerned but I would suggest you try googling 'Vasculitis UK-Healthunlocked' as the members there are from all over the UK . Hope this helps - but come back here and let us know - we care !!
Best wishes Fran