Hi I was diagnosed with Wegner's about 18 months ago. I was prescribed prednisone and methotrexate. At my last appointment with the pulmonary doctor he said my lung was almost completely healed. I had had some very large cavitary lesions. He thought it would be okay if I started to go down on the methotrexate. I told him that I have been having some pain and stiffness in my hands and knees and legs and asked if he thought it could be related to the Wegener's and he said he didn't think so.
When I went to see the rheumatologist who was running an hour behind schedule and trying to catch up he felt that would be okay to decrease the methotrexate by .05. My last appointment I told him about my hands being stiff and my legs being stiff and my fingers being numb and he had given me some gloves to wear at night. I told him that the pain in my hands and knees and legs were worsening. I asked if he thought it was Wegner's he said he it could be but he usually sees more inflammation. I told him that my legs and feet are often swollen. He didn't have much to say at all about that. He really didn't give me time to ask questions. When my blood test came back my sed rate went from 32 up to 56 isn't that inflammation? That's the highest it's been even right when I was diagnosed it's really never been over that 33. So my question if I'm still having these new symptoms is it wise to start tapering off the methotrexate? He also said that tapering the methotrexate could lead to relapse and it was a really good chance that that would happen. Does anyone have any thoughts or advice for me? I'm planning to call my PCP tomorrow because the pain in my legs is getting worse and I almost feel like I won't be able to walk soon.
Thanks for reading-
Victoria
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