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Thread: GI symptoms?

  1. #41
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    It doesn't say he is interventionary. So far I am pleased with my lung doc. I know that if he thought I needed to see someone else he would have suggested it. I can always ask Specks too if I feel it is necessary.
    Phil Berggren, dx 2003

  2. #42
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    Lisa, you are such a good soul. we are blessed to have you with us
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  3. #43
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    My ENT was the first who was pretty much convinced I had Wegener's. Before the official diagnosis when I was sent back to him for a biopsy of the sinus he told me that once a year he has a patient where the sinus surgery doesn't appear to fix the problem. That patient usually turns out to have Wegener's. Even though the sinus biopsy didn't show any granulomas he was still convinced it was Wegeners and after my diagnosis he told me I was lucky we didn't have the diagnosis prior to the operation in October last year as he wouldn't have been game to operate but now he is glad we did it and cleared away a lot of diseased tissue. He also told me that he had a number of Wegener's patients and that I was by far in the best situation as far as the sinus, ears and throat went So that was comforting.

    I was also very lucky that the eye specialist I have been seeing for years for the intermittent eye ulcers has other patients with Wegener's so he knows what to look out for as well.

    But my official diagnosis came from the Rheumatologists. And it's the Rheumy is my main treating specialist now.
    "Slow and Steady wins the Race"
    All the best, Inge

  4. #44
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    Quote Originally Posted by Alysia View Post
    Lisa, you are such a good soul. we are blessed to have you with us
    i am blessed to have found all of you!
    Just when the caterpillar thought the world was over, she became a butterfly.
    - English proverb.

  5. #45
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    Quote Originally Posted by pberggren1 View Post
    It doesn't say he is interventionary. So far I am pleased with my lung doc. I know that if he thought I needed to see someone else he would have suggested it. I can always ask Specks too if I feel it is necessary.
    I'm glad you're in good hands then. I guess I dint want to accept that there's nothing that can be done to help with your lung issues. I feel like there must be something more they could try. I know you're getting the respiratory therapy in July and I'm hoping that will help.
    Just when the caterpillar thought the world was over, she became a butterfly.
    - English proverb.

  6. #46
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    Quote Originally Posted by pberggren1 View Post
    Your nose and throat and lung nodule are very common to Wegs. I am surprised an ENT diagnosed you Lisa. Most ENTs have no clue what Wegs is. You prob have a good ENT. Hang on to him for a while and test him out.
    I was diagnosed by an ENT within 5 minutes of walking into his office - when other doctors had no idea for 16 months.
    All he said was - "I am pretty sure you have Vargenerrrrs Gran?????osis but you need some blood tests and a biopsy on your sinus to confirm it"
    We had no idea what he said - but saw it written on his blood test request.

    He is the best
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  7. #47
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    I know Lisa. Your heart is just overflowing with love.
    Phil Berggren, dx 2003

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