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Be Careful when being treated at Hospital Emergency Rooms!!!!!
I have not been on the site for almost 2 weeks now. I will tell you why. Because I have been in the hospital. I take strong pain meds for my sinuses, since they are no longer there and take special care of them, and glass tubes in the corners of my eyes, etc. Causes extreme pain in my face. Sounds weird, even Doctors don't understand until they see my facial X-rays. The BAD thing about these meds are CONSTIPATION!! I have been fighting it for years. Well it finally happened.....I got impacted. about a foot up from my colon/anus. They took xrays, and saw exactly where it was, so 2 girls, technitions I suppose, put me in a room and mixed up some liquid, and did the enema. Well IMMEDIATELY I had to GO!!!! They told me to hold it a little longer, then let the fluid out. Then I ran to the bathroom and I was fixed!!! I thanked them and got dressed. Then I had to go again! Yay! getting it all out!!!!! I went back to where my Mom was waiting, and the ER DR said my Potassium was too high for them to send me home, Probably caused from the laxatives, and enemas I had tried at home before coming to ER. So they were going to keep me overnite. Then I had to "GO" again. So I ran to the bathroom, and something did not feel right. I felt back there And I thought my colon had prolapsed, and was falling out of me! Plus, a bunch of BLOOD wan in the toilet!!! I was terrified! I ran and told Mom, she got the RN. As I was waiting for a room, I had to "go" 2 more times, I was was still expelling from my impaction, but there was still a lot of blood, and my colon was now contracting like a muscle spasm in my rectum. It was more pain that I had in childbirth! Wnen they got IV's going and helped my pain a little, I went to a room. Ct scan showed EXACTLY where impaction was. Then I had a colonscopy 3rd day in hosp. It showed that my colon had been burned and looked black and gray, and had an open ulcer, and the sides of the colon were thickened. But It was only like that from where the enema was, above that was fine! The Hospital Dr that did my colonscopy was MAD!!! He wanted to know what they used in the enema. Not sure what all was in it, but they used Peroxide. He said that they NEVER should have used that on me! He actually came to my room and told me he honestly felt the problem occurred when they did the enema. But they did not know I had Wegeners. Well, Me and Mom nearly fell out of our chair/bed.....I ALWAYS bring a copy of my wegeners information, with a backgrouned of the dz. and a copy of all of my surgeries, etc... Things like this have happened before, where Drs, or Nurses that have not heard of the dz just kindof ignore it for some reason! Peroxide should NEVER be used as an enema when you have Vasculitis disease!!!! So I was in the hospital for six days, writhing in pain, since my long term use of pain meds make me kindof immune to the regular doses of pain meds given to a person my size. The doctor that did my colonscopy said he had to give me enough pain meds to put me out for the procedure, that would normally put 2 people out. I have been staying with my parents since I left the hospital on April 19. My spasms have stopped pretty much, just feels like menstrual pain. No more bleeding. Im gonna try to go back to work tomorrow. Things seem to be healing, and no fever. So God is good! I really wanted to share this, because people do not understand Wegeners, and how sensitive we are to some things. If the hospital staff had taken a closer look at my admission papers, and my disease, they would have chosen a different way to treat my impaction! My hospital stay was a nightmare. It was the most humilitating,(I had to wear an adult diaper the whole time!) painful, fearful (I was scared I would lose part of my colon). It took 5 doctors of different specialties to diagnose what had happened to my colon. They had never seen something like this before! So I say all this to tell ALL MY WEGGIE FRIENDS...... BEWARE of people who do not know your disease! Explain it is a VASCULAR DZ and NEVER EVER let them use peroxide in an enema!!!!!! I hope I helped at least ONE person form the nightmare I went through. Love and happiness to all!!
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