My son, was the 13 year old recently diagnosed. Problem I am now having is there are no pediatric rheumotologists that have seen Wegener's. Even his ENT and pulmonologist agree that an adult rheumotologist needs to treat him because they have seen the disease more often. I have an appointment for him at children's hospital in Birmingham, guess when? May 5. All the adult rheumotologists I have contacted won't treat children.

Anybody have any ideas?