Please give me your advice ~~ i'm a little frustrated!
I'll try to keep this as short as possible .... due to several infections, my Rheumatologist has stopped my treatment for WG since prior to my last hospital stay in December 2013. Since that time, I have had a couple of other infections as well which led both her and my Pulmonologist wanted me to consult with an Immunologist to see if he could help sustain my immune system while allowing me to tolerate treatment. Consult results were pretty much what we expected ~ no antiboties or immune system ~ so I just completed my 2nd IgG Weekly Sub-Q Infusion last week.
My rheumy cancelled my last appointment because she said really couldn't do anything until after I say the Immunologist {which I understand - they all say that I am a high risk case}. I guess my frustration is that during all this time, my WG symptoms are getting worse and I really don't know how much more of this I can stand! Don't get me wrong, I've been very please with my treatment from my rheumy & I understand the position she is in as I have more that one issue going on which causes her to proceed with caution. But I am so tired of hurting ....... there has to be an answer
Auntie TooToo ~ diagnosed {finally} 4/2013
“Each morning when I open my eyes I say to myself: I, not events, have the power to make me happy or unhappy today. I can choose which it shall be. Yesterday is dead, tomorrow hasn’t arrived yet. I have just one day, today, and I’m going to be happy in it.”
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