I am happy to have found this site. It is good to hear from others that are experiencing similar situations to mine. It appears that there is more good information available from the postings here than some of the medical professionals have.
I was diagnosed in June 2008. This diagnosis came after I had bugged my primary doc that something was going on with my body. Her response was “you need to remember that you are almost 70 yrs old”. I pushed for some blood tests and then things started happening once a nephrologists got the results. The damage had been done to the kidneys but they were able to control and then reverse the situation.
It has been a long road and I find that most of the progress has been due to my urging. The bottom line is that we need to be very vigilant and become our own best advocate.
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