Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Alysia, don't worry about your English grammar. It is just fine. We always understand what you are saying. As you can see, there are some significant differences in native English speech and usage of words throughout the world.
Now, lets cross our fingers and keep waiting for a good report from Deb from Johns Hopkins! (You are right, Putin is too busy right now...)
Anne, dx'ed April 2011
I've been talking to Deb and I'm sure see will report when she is ready to talk. She is still in MD. sightseeing with her mom and sis.She's coming back home on Fri. but I will say she does have wg
Life isn't about how you survive the storm, but how to dance in the rain !
Not what anyone wanted to hear however she is seeing the right doctor and hopefully will make great strides.
Dale
Dx Aug, 2009 Remission June 2010 until 8/1/2014
I personally think that having WG is a good thing - as Anne said, at least now she knows - and hey, she loves us so hanging around here can't be all that bad ....... right
At least she didn't get given that horrible "inconclusive" rubbish
We look forward to hearing how it all went, when you are ready Deb.
Enjoy your little holiday
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
Sorry, Deb... this is something you don't wish on anyone, but, like Mish said, its way better than not knowing. Besides, we like having you hang around here.... :-)but I will say she does have wg
Wegener's (GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017, Hypoparathyroidism - 2017. (my story)
Forum Member Map -- world map for you to put a stickpin of where you are located....
Sorry to hear about the results for you, Deb, but there is some relief in having a diagnosis. Too many of us have been strung along in a state of "not sick enough".
I am still undiagnosed, but hope for some continued good information to help move my case along.
HaHaHaHa, Me Too Debra! HaHaHaHa!!!!
Life is a Gift~ Lilly
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