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Thread: A public apology

  1. #11
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    Bah, whats an occasional arguement. We all have Pred on board. Don't you dare go away!
    ~ Bob

  2. #12
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    DON'T GO! We have teamed up with Andrew and it just won't happen. Get to feeling better!
    "Never go to a doctor whose office plants have died." - Erma Bombeck

  3. #13
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    Marta I think it was brave of you to apologise. I had to learn a few years ago that Autoimmune disease can affect your brain and cause panic attacks, paranoia and all sorts of emotional aberrations. Before I became so ill I considered myself quite stable and emotionally in control. In fact I had no understanding of how others couldn't stay cool calm and collected. Then when it started striking me I had to humbly accept that there were times I over reacted, panicked and even made up things I THOUGHT people were THINKING about me and read those into carelessly spoken words which were never intended to hurt me but boy hurt they did and I totally flipped out. If I was alert enough to recognise it I would swallow a valium and that would calm me down. In the end I told all my friends ... if you find me behaving out of character gently ask if I had taken my medications or if I needed to swallow a valium to relax.

    Then a few weeks ago Mr Pred came along and here I am a 63 year old woman bursting into tears at the most ridiculous moments. Tiny things in hospital would upset me irrationally. Or a phone call even. I would ring someone to ask something and before I knew couldn't talk for crying. First time it happened I was talking to the receptionist of my ENT specialist about the timing of an appointment for goodness sake. I don't think she knew what had hit her. I had to tell my friends who talked with me over Skype should I ever go silent it would be because the microphone got muted when yet another weeping attack overcame me. In hospital it took a bit longer to get hold of a valium

    One of my friends has had several emails explaining I would quite understand if I was becoming a total bore and they needed a break from my constant chatting. Those emails are fired off when my mind has imagined all kinds of slights and issues that never existed. My friend and I laughed about it the other day. I am glad my friends are understanding.

    And here on this forum we all have our ups and downs and if WE CAN'T UNDERSTAND then how on earth can we expect those not afflicted to understand us?

    My niece is ill too and she was going through a total emotional over reaction the other day and I said ... take a deep breath then find a Valium go to sleep and tomorrow your paranoia will have subsided. She agreed with the deep breath and we were able to laugh a bit both knowing how quick these moods can take us over.

    For me I don't think anyone here needs an explanation Marta. The important thing for all of us is to make sure those not afflicted who have to live with us and deal with our moments are told how it feels and how we can't help it and what they can do to help us when disaster strikes If my dear friend had taken any of the emails seriously I had sent I would be devastated as I value the friendship and it has often been a lifeline for me to spend some time forgetting that I am ill and having something other than symptoms and diseases to think about.

    Take care and like everyone else has said ... don't stay away
    "Slow and Steady wins the Race"
    All the best, Inge

  4. #14
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    Dear Inge. I think that all you need is just a BIG warm comforting hug
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  5. #15
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    Inge, I have also experienced the increased paranoia, over-reaction to things people say or to any little situation that comes up, etc. So you are not alone. I don't know exactly what happened in this case with Marta and Phil, but I do think that our buttons get pushed a little more easily and we are more likely to lash out verbally, or at least it is true of me. It is good that you pointed this out.
    Anne, dx'ed April 2011

  6. #16
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    Thanks Anne and I am sure what happened in this situation is only relevant to Marta and Phil. The fact is it's good to hear we all need to give each other a lot of space and my point also is we must realise that those who live with us and we are in contact with who don't quite understand the illness need to be told that there are times we may not be "ourselves" and not to take it to heart but to help us see we are having an "emotionally not so stable" moment
    "Slow and Steady wins the Race"
    All the best, Inge

  7. #17
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    Inga I wish it were that easy at my house..they all think I am a b**** and am too emtional. I tried to explain but they just don't get it.That's why I'm glad I have all of you
    Life isn't about how you survive the storm, but how to dance in the rain !

  8. #18
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    Quote Originally Posted by Debra C View Post
    Inga I wish it were that easy at my house..they all think I am a b**** and am too emtional. I tried to explain but they just don't get it.That's why I'm glad I have all of you
    You are certainly not a b**** Deb. Your are too kind for that. I think we understand you better than your own family.
    Phil Berggren, dx 2003

  9. #19
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    Thanks Phil...I try
    Life isn't about how you survive the storm, but how to dance in the rain !

  10. #20
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    Man, is there greater group of human beings out there than this forum family? You are all such an inspiration to me!
    - You can judge the character of a person by how they treat those who can do nothing for them.

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