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Thread: Symptoms

  1. #11
    Doug Guest

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    Quote Originally Posted by Scott View Post
    Thanks again guys. Her cough seems to be improving and we didn't hear that wheezing sound as much last night, so maybe (hopefully) the docs got lucky with the antibiotics. The vomiting has continued but it seems like it's mostly liquid coming up - I almost think she's just having trouble keeping the water down that she's supposed to drink for the cytoxan. She's always hated that. Doctor appt. tomorrow...

    (Still curious about trach. sten. symptoms if anyone else has any input.)

    Thanks again. -Scott
    At the absolute worst, I had a session of vomiting, where I counted 18 (!) eruptions in a row. I was so tired and sore toward the last that I was crying. I hope your wife continues to improve, that the vomiting is brought into control. There are times you can't imagine where the material being brought up came from, or what's next (the stomach???!).

    I was stupid about bring it to my doctor's attention, so suffered needlessly in this regard.

    Make sure her doctor is aware of the severity of the vomiting and the frequency the next time your wife sees him/her. As mentioned before, if she is at a weight that is right on the line of requiring more or less Cytoxan, her doctor may have decided on the higher dosage to determine how heavy a dose she can handle, with the expectation that issues like vomiting would help him/her adjust the dosage to a level adequate to bring her WG into line.

    (p.s. all I had to do to trigger vomiting was to take my medication with cold water; like your wife, I was trying to drink lots of water, as directed, and used a 28 oz.[roughly 0.95 liter] glass; lukewarm water helped for pill-taking for me)
    Last edited by Doug; 09-08-2009 at 10:44 AM.

  2. #12
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    With my current flare, my doc started me on 150 mg ctx, which is well below the weight-adjusted dose for me. He felt it would be strong enough to get things under control. He's extremely conservative about using these drugs, given their short and long-term effects. The ctx is not really working, though. Much as he (and I) would like to increase the dose, my blood counts are too low, which means my body couldn't tolerate more. That's why he's looking into ritux for me.

    But back to vomiting: I've always had a question about it, but have never known who to ask. When you're vomiting throughout the day (for example) how do you answer the question "How many times did you throw up?" Is it once for every time you ran to the bathroom, or once for every time something comes up?

  3. #13
    Doug Guest

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    As a guy (i.e. Overly enthralled with icky bodily functions, fluids, wastes, and damn proud of them!), I count each instance of something emptying from my stomach as one instance. So, the day I counted 18, it was only one trip to the toilet bowl. That same day, I went a second time around 20-30 minutes later, and managed to toss my boots five more times in a row. It was mostly fluid then, but the last two were globs of mucus. I suspect, by then, the only thing left in my stomach was a black hole. Total for that 24 hour period, then, 18 + 5 = 23, in two trips. The second trip happened because I drank more cold water, to rehydrate myself.
    Last edited by Doug; 09-08-2009 at 12:40 PM.

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    Well, then I have seriously been under-reporting my barf episodes! No wonder ER docs would roll their eyes at me when I'd say I'd been throwing up all day and only reported 5 or 6 episodes. I should go back and revise all my medical records. I want full credit for those days.

  5. #15
    Doug Guest

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    This is what comes of being a Quality Analyst in my working life: you need to define you data in a way that no one can fault your analysis, and no one can claim you didn't say, "I told you so!" It's a hard, hard, mean, scrappy, unctuous-breeding sort of life best suited to people who, in almost 36 years of it, can say, smiles all around, "I'm retired! I just don't care!" and mean it in the most scathing, smug, mean-spirited sense of it. "I told you, you ignored it, you don't have me to ignore anymore! Tah! Tah!"

  6. #16
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    Thanks Gwen, much appreciated!

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    Yesterday I had my usual night strata meeting and at the tail end had to tail it out of there pronto, fortunately they are all old people and understand my predicament and had a kind lady volunteer her bathroom. My montuzuma's revange strikes anytime anywhere. Fortunately (or not depending on how you look at it) I never had the barfies except when I had the burst appendix. Then I spent the whole night hugging the toilet and dry heaving every 5 minutes.
    Jolanta

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    So how many times did you throw up?

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    from 9 pm to 8 am every 5 to 10 minutes
    Jolanta

  10. #20
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    I having been having difficulty with my pills getting stuck in the back on my throat! I have an appointment on Monday to see my sinus and throat doctor. Scarey!
    Last edited by Cindy; 11-08-2009 at 03:38 AM.

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