Welcome to the club, Miska.
You'll get a lot of good info here, and there's usually someone on here 24/7 who can answer your questions or empathize with what you're experiencing.
Questions: Do you have a vasculitis specialist? If not, does your doctor consult with one? Here's a list of vasculitis specialists for your reference: VF Medical Consultants
I can understand the high dosage of prednisone as you have some other problem that requires intubation if you're off it. Perhaps this is another effect of GPA/Wegner's. I'm concerned that methotrexate as an initial medication may not be strong enough to arrest the disease. Many of us on here have had either cytoxan or rituximab to arrest the disease and bring about remission. You may want to ask your doctor about this.
As for your energy returning, it will once your disease is under control. There's one woman on here occasionally who has climbed Mt. Everest and has run the Iditarod (as I type) since she was diagnosed. I'm also almost back to normal walking 2- 3 miles a day and doing some light weight training several times a week. Just start slowly and increase very gradually.
Good luck and better health!!
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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