If you were on Cytoxin for TWO YEARS, then my opinion is that you need to find another healthcare team that specializes in Wegeners! Everything I read is that 6 months is the standard protocol, and that extended exposure to CTX is more risky to bladder cancer and other side effects.
Sorry to hear that you are going through all of this. I'm coming off a particular nasty flare myself, and this time, Rituxan was the answer, not Cytoxin a second time. My doc said Cytoxin was too risky and recommended RTX this time around.
Remember, as a patient, who is his own healthcare advocate, it is your responsibility to take care of you first--even if it means getting a second opinion on your case.
Ask around here for doctor and heath-care referrals. There are a lot of people who are very happy with their weg specialists on this forum.
MikeG-2012
"You never know how strong you are until being strong is the only choice you have"
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