Originally Posted by
HopeinTN
Thanks all for the well wishes. Yes, I have seen Dr. Seo at Hopkins and he and my docs at Vanderbilt agreed on my treatment. It wasn’t an ordinary diagnosis as my labs did not reflect the disease but the pathology did. I also have a urologist that monitored my bladder during this time. Other than zapping my immune system, fatigue and shingles, I think it did minimal damage.
I’ll update y’all after my appointments tomorrow.
The problem with CTX is that it can cause bladder cancer many years down the road. It isn't just while you're on it. My labs don't reflect the disease either and I don't think this is too unusual. Most docs depend on the the pathology. I would definitely do some research on the effects of CTX before agreeing to use it again especially when RTX is much safer. Just my humble opinion. I'm currently on CTX and really want off it, but have another 3 months on it for a total of 6 months.
Cindy
Earth is just a stopover and whatever you achieve there is only a small part of the deal. The Afterlife Of Billy Fingers
Bookmarks