Hi Inge,
welcome to our weggie family.
I am sorry for your long road of suffering, it is time to start feeling better !
I have WG with colon involvement. it is rare. I went to couple of gastro-docs, untill I found one, old and experienced, that told me that it is wg in my colon. I also did calprotectin test which turned out positive. it helps for diferential diagnosis between IBS and IBD. my IBD is wg-induced according to my doc.
the gastro doc said that it is similar to crohn, if looking through colonscopy. I didn't do one, feeling too weak to stand it, and my doc said that it is not necessary.
my treatment : pred, mtx, rtx, helps my colon symptoms as well. when I flared, the colon is also in bad shape. it means lots of diarhea and strong pains in my stomach.
still, I am keeping very strict diet, eating almost nothing, otherwise I am in trouble.
what treatment are you going to get ?