Hi Lindsey, Did you get a copy of the CT? If so how does it read? The radiologist will usually indicate what the chances are that the nodule could be cancer, TB, WG (might say inflammatory). Also, I hate to disagree with your doc regarding WG not presenting as only a single nodule, but I do. No where in anything that I've read through the years about WG's says that it only presents only as multiple nodules in the lungs or one in each lung. (This doesn't mean I'm an expert, but I would think if this were the case it would be well known.) Does this pulm doc have any experience with WG's at all? Even though your pulm sounded confident (that's their job as they wouldn't want you to think they were an idiot) doesn't mean he is. He could be reading from a book with no real life experience with WG's. Also where is the nodule located in the lung?
I would encourage you to call the Cleveland Clinic and make an appt with a specialist to get some definitive answers before having a lobectomy. That is very invasive and I'm surprised that they are unable to do a wedge biopsy. You should be able to get into the Cleveland clinic relatively quickly from what others have posted.
Also a suggestion is to get copies of all records as you go along. This will make things so much easier in the long run especially as you pick up or change doctors.
On the up side don't panic. I know that your visit didn't go as planned, but don't assume the worst. I've had reads on CT's that say "can't rule out cancer." I would be more interested in what the pathologist found and his conclusions which are based in fact not speculation. Unfortunately the only way to tel what the nodule is, is by biopsy. The question is whether or not a lobectomy is required. As my doctor recently told me "the issue is the tissue." Please get a second opinion. Best wishes and please keep us posted.
Last edited by windchime; 02-07-2014 at 12:09 AM.
Cindy
Earth is just a stopover and whatever you achieve there is only a small part of the deal. The Afterlife Of Billy Fingers
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