User Tag List

Likes Likes:  0
Page 1 of 4 123 ... LastLast
Results 1 to 10 of 32

Thread: Face normal at 6mg's - hurrah

  1. #1
    Join Date
    Jul 2008
    Location
    Lakes Entrance, Victoria, Australia
    Posts
    126
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Face normal at 6mg's - hurrah

    I walked past the mirror a few days ago and guess what I saw? The old me. A normal face. Hurrah. Other people have noticed it too. It happened at 6mgs of Prednisilone. Now I have no excuse for the extra weight I have on in other areas. Summer is on it's way here in Australia so what an incentive. I have been dropping Pred 1mg every 2 weeks so am very excited. Everything is feeling OK although it's interesting that despite my strange gait and spending so much time lying down etc over the past 15months I have not felt any stiffness, rheumaticcy pains or sore back etc. But now I am. I am guessing that the Pred supressed all that. I've also had a tooth flare up at 6mgs so I suspect it was also suppressing a nerve problem in my tooth. I write it up on the medications stream so read about it there.

  2. #2
    Doug Guest

    Smile

    Quote Originally Posted by Carol View Post
    I walked past the mirror a few days ago and guess what I saw? The old me. A normal face. Hurrah. Other people have noticed it too. It happened at 6mgs of Prednisilone. Now I have no excuse for the extra weight I have on in other areas. Summer is on it's way here in Australia so what an incentive. I have been dropping Pred 1mg every 2 weeks so am very excited. Everything is feeling OK although it's interesting that despite my strange gait and spending so much time lying down etc over the past 15months I have not felt any stiffness, rheumaticcy pains or sore back etc. But now I am. I am guessing that the Pred supressed all that. I've also had a tooth flare up at 6mgs so I suspect it was also suppressing a nerve problem in my tooth. I write it up on the medications stream so read about it there.
    "Gad!" Carol thought. "This buzzard's stalking me!"

    Not really! Congratulations on losing your moonface!

  3. #3
    Join Date
    Apr 2009
    Location
    Edmonton, AB, Canada
    Posts
    163
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Oh Carol, your moon face is gone! I know you really don't miss it, Congratulations, it must feel wonderful.

  4. #4
    Join Date
    May 2008
    Location
    Canberra, Australia
    Posts
    1,578
    Post Thanks / Like
    Mentioned
    35 Post(s)
    Tagged
    2 Thread(s)

    Default

    Congrats! Well done! No way will you miss it
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  5. #5
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Yeah, you won't miss it. I mean, you can once again go through doors without turning sideways!! Maybe you can have a "Bye-bye Moon" party. The earth only needs one, you know....

    And definitely even very low doses of pred mask a lot of aches and pains and even infections. I've been taking a mere 5 mg for the past 2 days. And I can't believe how much pain it takes away!

  6. #6
    Join Date
    Jun 2008
    Location
    Miami FL
    Posts
    418
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Talking

    Does this mean you will now start having "moon pie" for dessert?

  7. #7
    Join Date
    Aug 2008
    Location
    Mission, BC, Canada
    Posts
    1,802
    Post Thanks / Like
    Mentioned
    2 Post(s)
    Tagged
    0 Thread(s)

    Default

    Bye bye moon face here comes Carol, I noticed that even at 15 pred, but getting rid of that extra poundage is proving to be soooo hard. Good luck, let us know how you are doing with the battle of the bulge.
    Jolanta

  8. #8
    Join Date
    Apr 2009
    Location
    Edmonton, AB, Canada
    Posts
    163
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Speaking of preds, I went to my Rhuemy on Monday and my blood work came back better then ever so she wants to lower my preds from 80 to 70 mg for 1 week and then down to 60 for 2 weeks, 50 for two weeks and then I will have another appointment with her. I am a little nervous because I started at 60 preds when first diagnosed and every time I lower the preds WG seems to come back even stronger. I have an appointment on Thursday with my Opthomolgist and my rhuemy wants me to go over the pred plan with him to see if he agrees with it. She is working closely with him because my eyesight is being greatly affected by WG. She has also told me to up the preds on my own if I get down to low and just call and let her know, not to wait til she gets back to me. I would like to say wish me luck cause right now I feel the best I have in a while. Just need to follow that low fat, junk free diet.

  9. #9
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I hope everything keeps going well for you, Cindy. Very glad your docs are working together as a team.

    You can't stay at such high doses of pred for very long, so if the Wegs comes back with lowering it again, you may need to switch the immunosuppressant you're on.

  10. #10
    Join Date
    Apr 2009
    Location
    Edmonton, AB, Canada
    Posts
    163
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thats what my Rhuemy said about the high dose of preds. I did start out on methatrexate and that didn't work so now I am on cyclo and the retuxan. Do you or anyone else knows or experienced the loss of smell with this. I have not had the enjoyment of smelling anything for the last 10 months and was wondering what the chances it would come back.

Page 1 of 4 123 ... LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •