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Yep, you are right. He is acually a pulomonary doc that's why I'm going to see the others. He is very good though. He has been seeing 14 other Weggies which I see is alot for the surrounding areas.
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hey, im new and i didnt really know what to say to get involved..
ermm.. im 16 and i was diagnosed with WG in April
not sure what else to say..
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Hi Stephanie,
It's nice to meet you. Wow, 16. How are you dealing with having Wegs?
You can tell us your Wegs "story" if you like-- how it started, how you got diagnosed, what kind of treatment you're doing, etc.... You can reply here, or go to the Home page and start a new thread. You can also just jump into any conversation and put your two cents in!
There are several other young Weggies who have joined recently.
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Welcome to the forum Stephanie! You did exactly what you need to do: introduce yourself! Like Sangye says, give us a bit of you history with WG, and finish up with how you are doing now, and ask any questions you might have that are on your mind or bothering you. Also, spend some time going through the old postings. They, no doubt, will answer some of your questions, bring up others, and give you a sense of how the forum works. Don't feel uncomfortable or think you have nothing to add to the forum: each of us has a different experience with the disease, doctors, family responses, etc.
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Hello everyone!!
Sorry I've been so MIA this week! Been swammped with a billion and ten things. Hopefully things will slow down by the weekend! Hope you're all doing well! ps. Welcome Stephanie!!
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Ashley,
Thank goodness that your friend has someone like you who cares. WG..or as we call it here our new BFF...is well...ummmm.."horrible". But on the bright side most, actually many of us survive it and move forward and live a wonderful life with family and friends. This does this not mean we don't have our setbacks..WE DO!!!!
But for the most part...what really keeps us going is the support from family, friends like you, this Wegener's Forum and "Escape the Room" a game which is a {ohhh well maybe a story for another day}.
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AAAAAHHHH! Escape the Room! I just thought about it last night! I forgot I was still in The Room. I've grown to like it in here. Very quiet.
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Is that u still in there Sangye...you know winter will be upon us, time to hunt for food. You can always go back in later,,hahahahahha
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Yes, I imagine I'll grow tired of snacking on the foam inside the briefcase. I'm sure there's a big pile of food behind the alleged third panel. No, no....look how it's pulling me in again. I will NOT hit the "Continue Game" button. I.WILL.NOT.
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Barley's looking very tasty - fancy a rabbit and foam stew Sangye?
We might not be able to get out of the room but I'm sure we can figure out dinner...
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