1st RTX infusion today

[D.B.]

so happy all went well and no adverse side effects. started with steroid and benedryl. then 1/2 hr later started RTX 1000mg. was there about 5 hrs. BF stayed with me and brought me snacks lol hoping i dont experience flu like sympto.s tomorrow. thanks to everyone here who posted their experiences as i went with positive attitude that things would go well

[Pete]

Glad to hear all went well. Hope you continue to feel well.

[carriej22]

Wow 5 hours! That is a great time!

My first one was almost 12 hours, but I had a reaction. Man, that was the longest day of my life! Mine continued to drop, down to 8, 5, and the quickest one was about 4 hours. Still not a fun time; but gotta do what ya gotta do!

I just felt pretty wiped after mine and slept pretty much for a few days... No nasty sicknesses though.

[JenG]

So glad to hear your infusion went well! Are you doing 2 infusions or 4?

I just had my first infusion last Wednesday, and like Carrie, I had a reaction too. I have not had any sickness since but do think that I am still having a post reaction. I don't think my rheumatologist believes me as all of the inserts say that reactions can only happen during infusion but I have tingling/weakness in my arms, a tight and heavy chest, hot flashes, rapid pulse and occasional wheezing--all of which I had along with my anaphylactic response during infusion. I have been taking benedryl when it gets too bad and it goes away leading me to believe that it really is a reaction. I'm to go in for second/last infusion next Wednesday. I am generally the exception as I am highly sensitive to many meds.

I am thankful that everything has gone well for you so far and am looking forward to hearing how you are doing over the next few weeks and months! Hope you are able to enjoy your New Year's Eve and wishing you a healthy new year!

[D.B.]

So glad to hear your infusion went well! Are you doing 2 infusions or 4?

I just had my first infusion last Wednesday, and like Carrie, I had a reaction too. I have not had any sickness since but do think that I am still having a post reaction. I don't think my rheumatologist believes me as all of the inserts say that reactions can only happen during infusion but I have tingling/weakness in my arms, a tight and heavy chest, hot flashes, rapid pulse and occasional wheezing--all of which I had along with my anaphylactic response during infusion. I have been taking benedryl when it gets too bad and it goes away leading me to believe that it really is a reaction. I'm to go in for second/last infusion next Wednesday. I am generally the exception as I am highly sensitive to many meds.

I am thankful that everything has gone well for you so far and am looking forward to hearing how you are doing over the next few weeks and months! Hope you are able to enjoy your New Year's Eve and wishing you a healthy new year!

thank you. happy new year to you. seems reactions not a rareity. how will 2nd infusion be different (prevent reaction?). im having 2 infusions. next one in 2 weeks.
does your dr think your symptoms are disease related vs treatment related?

[JenG]

how will 2nd infusion be different (prevent reaction?). im having 2 infusions. next one in 2 weeks.
does your dr think your symptoms are disease related vs treatment related?

For the 2nd infusion they will administer the Benadryl via IV rather than a pill and give me a larger dose prior to treatment I believe. I know 2nd infusion is usually administered at a quicker rate--I'm hoping they keep it slower for me! Dr. didn't really make much of a comment regarding what I believe to be treatment related symptoms other than to just monitor. I had an ENT apt today and ran it by him--he was much more open to it as he has known me for a much longer time. No answers though as he wasn't the one prescribing the treatment...I guess I just get to tough it out!!

Again, I am so happy for you that you didn't experience any reactions! I'm glad you were able to sleep on your trip home--I was wired even with the extra Benadryl. I attributed it to the steroid as even half a Benadryl usually knocks me out. Good Luck!!

[D.B.]

Wow 5 hours! That is a great time!

My first one was almost 12 hours, but I had a reaction. Man, that was the longest day of my life! Mine continued to drop, down to 8, 5, and the quickest one was about 4 hours. Still not a fun time; but gotta do what ya gotta do!

I just felt pretty wiped after mine and slept pretty much for a few days... No nasty sicknesses though.

glad no more 12 hrs for you.
as soon as we got in car for 2 hr drive home i was asleep lol

[Lilly]

So glad things went well! It sounds like your experience was similar to mine. I've had 3, I get one every 6 months, its basically a maintenance thing, I've had it so long that it was the best thing to do for many reasons. I basically feel like carriej22......I'm tired and feel worn out for a couple days. But no bad side effects. Keep up the positive attitude! That's so important! Take care

[Debbie C]

Glad yours went well and I'm sure the next one will also.
When I had mine ( I was scheduled for 2 ) but everything went well during the infusion, mine took about 8 hrs and they gave me 2 heated blankets and a pillow and I went to sleep but toward the end it was time for them to go home for the day and they pushed the last amount in quickly. I ended up getting flu like symtems so my reumy won't let me have another unless absolutely necessary.

[LillysMom]

Glad all went well. My daughter's 'friend' is me . . . Mom. She has had several now, one every 6 months. I have observed her after because she usually stays with us for the first couple days, and when she is home I try to check daily for a while after. She expresses that she feels like 'something foreign has invaded her body.' She also has had some mood problems after at least one infusion. So everyone has different reactions, even when they are not considered medically dangerous. But this being your first one, don't hesitate to call your doctor if you have any of the side effects on the list he/she gave you. Better safe than sorry until you understand your personal reactions.

LillysMom

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