Cleveland Clinic

[Debbie C]

Going to Cleveland Clinic on Tuesday at 11:30 to see my new rhuemy Dr Carol Langford.....anyone going to be there then ?

[Jaha]

Wishing you all the best with your new rheumy tomorrow Deb!

[Debbie C]

Thx. Jana. All went well. I think I had a sinus infection with this wonderful Ohio weather ! Dr. Langford is very professional. I like her

[jakekell]

Iola,

I live in the Kalamazoo area and had a terrible doc there. I know go to Villa-Forte and she is wonderful. My first Rhemy in MI was ok then got someone that had no idea what she was dong. I headed for CC and was the best thing I ever did with my WEGs.

[jakekell]

My rhemy should have sent me to CC, but sent myself instead to Dr. Ville-Forte. This was the best move I ever made she great and Wegener's is very involved in Wegs. Good luck with your journey.

Mary

[Debbie C]

Well I got a call from Dr. Langford at CC yesterday and she starts out by saying " How you feeling ? " well I thought I was fine before you called !! When I was up there last week she had me do another urinaliysis ( microscopic ) and she called and said she has noticed changes in my bladder and wants to to have to more tests done by a urologist and is going to mail what tests she wants done. She said so far there is nothing to be alarmed about ,that these things happen to people that have been on cytoxin !!! I was on that for 6 months and that was almost 4 years ago ! So I don't know what she is looking for or the tests but I wanted everyone ( like all of us ) you have been on cytoxin at some point you might check about your bladder ??? I will keep you informed when I learn more, I have an appt . on Jan 26th. Staring the year out right

[Pete]

Hi Deb,

Hope the further tests turn up nothing serious. However, one of the side effects of long-term ctx use can be bladder cancer. When I had visible blood in my urine in April 2012, I had a cystoscopy that turned up no issues. I was treated for a UTI, and the problem cleared up. Now, a urinalysis with microscopy is a part of my monthly test battery. Dr Villa Forte said that the blood cells in the urine caused by wegs are different than those of cancer.

A cystoscopy is a test where a thin tube with a camera is inserted up the urethra into the bladder. It's uncomfortable but not painful. The lidocaine before the test helped.

Hope all goes well.

[Debbie C]

Thx for the heads up Pete. I always seem to have a trace of blood in my monthly tests but the other rhuemy I had up there never said anything about it. I am sure it will turn up nothing so I will not begin to worry. The scope thing doesn't sound fun though !!

[Dirty Don]

a thin tube with a camera is inserted up the urethra into the bladder.

Ouch...vaguely remember that part!!!

[Debbie C]

Good maybe I won't remember it either !!!