Sweating, Not Sleeping

[Pete]

For me, night sweats requiring a change of bed clothes are a symptom of very active GPA. I find I generally sweat more with less active disease than before. I suspect I sweat because my body is over insulated with pred pounds of fat I didn't have before I got sick.

[MikeG-2012]

For me, night sweats requiring a change of bed clothes are a symptom of very active GPA. I find I generally sweat more with less active disease than before. I suspect I sweat because my body is over insulated with pred pounds of fat I didn't have before I got sick.

I'm with Pete with this one. Before my diagnosis, I soaked the sheets every night with the night horrible sweats. Once the disease was less active, the night sweats stopped. I haven't had them since initial treatment--not even during this recent flare up.

MikeG-2012

[annekat]

I'm with Pete with this one. Before my diagnosis, I soaked the sheets every night with the night horrible sweats. Once the disease was less active, the night sweats stopped. I haven't had them since initial treatment--not even during this recent flare up.MikeG-2012

Me, too... very active night sweats right before diagnoses and treatment. Had some with my minor to moderate flare a year ago, but not like the original ones; if anything, they were a helpful sign that I was indeed flaring.

[Auntie TooToo]

OMG! Night sweats more than I can say ... I often wake up having to change clothes and sheets. My hair is so wet that is looks like I just got out of the shower! As for sleeping, that is a luxury that I haven't experienced in literally years! I do good to get 2-3 hours of uninterrupted sleep at night due to the effects of prednisone and/or pain issues from my WG's. I stay so exhausted all the time and long for the days when I use to be able to sleep a good solid 8 hours each night; but that has been a long time. When all else fails, I take multiple long hot baths during the night to help me relax.
Hang in there my Wegie friend ... there is hope at the end of the rainbow!

[OJSRLS]

Although no official WG diagnosis yet have had 3 positive ANCA test since an eye problem in Oct. 2013. I do have sleep issues waking up 3-4 times a night and not being able to get back to sleep. I also sweat terribly when other people beside me are chilled and I awake sometimes with night sweats My usual body temp. is 97.7. So far I have no major symptoms of active Wegener's but from what I've read this could just mean I'm in the early stages. Have to wait and see. I hope all goes well with you.

[annekat]

Although no official WG diagnosis yet have had 3 positive ANCA test since an eye problem in Oct. 2013. I do have sleep issues waking up 3-4 times a night and not being able to get back to sleep. I also sweat terribly when other people beside me are chilled and I awake sometimes with night sweats My usual body temp. is 97.7. So far I have no major symptoms of active Wegener's but from what I've read this could just mean I'm in the early stages. Have to wait and see. I hope all goes well with you.

For me, the night sweats did not really appear until things got bad in my lungs right before diagnosis. So, a couple of years of undiagnosed "smoldering" Wegs without the night sweats, unless I had some that I thought were menopausal hot flashes! Having trouble remembering back that far.