helooooo

[windchime]

Hello Broken Angle

Here you will find all loving, caring people that will happily help you through this trying time in your life. Don't give up! This site is also has a wealth of information about the disease process as well as personal experiences of its many members. Please tell us your story and what you are having a difficult time with. Chances are someone else has had similiar issues and can give you some coping tools. Lean heavily if you need to that's what everyone is here for. Hoping you are feeling better.

[Debbie C]

Welcome to the group broken angel. Sorry you had to get this disease to find us ( as we all wish we didn't have it ) but life does go on and things do get better. The most important thing is to find a dr that has knowledge of wg. And don't give up,if you have questions....ask, if you are scared ...talk or if you are mad...vent ( I do that alot. ) But we are like one big family here and now you have somewhere to turn to.

[rebekah]

Hi Brokenangel. I know this is a sucky thing to have, but this group is full of nothing but love and support. Please don't ever give up. It may be tough at times, but things do get better. Like others have already said, having a doctor that has experience is important. I'm not sure how much experience the doctors in India have with treating WG, but there are experts that can consult on your case with your doctors which can be found here: VF Medical Consultants. Feel free to ask questions and vent any time you need to. We are all here for you.

[brokenangel]

i really feel happy to be a part of this support group forum however sad to be one of the sufferers.i would def lyk to put up my story as to how it all began but at ths point of lyf i feel disgusted and lonely...i feel sad dt despite suffering from such a grave thing and battling wid lyf each day,having bein come out with a near death experience..god tuk away al d happiness from my lyf..n put in such people who on n off hurt me badly...m left wounded n d sad part is i cnt speak out or open up to my parent as she loves me tooooooo much to handle al dat.i also came across people who made my disease my weakness against me instd of supportin n makin me feel loved i was always kicked away....atlst i thank god a lot to bless me wid such a wonderful loving n caring mother....m scared wat wd i do if shes nt dere....i hav so much to tell but cant cz i dont want to c her hurt n feel low for me..thinkin dt her child is goin thru so much emotional trmoil...bt yes..nw smwhr d pred hs strtd givng me steroid inducd psychosis whr i wak up shoutn howlin at nite,,behav lik a mad,,smtms rude arogant.depressed wid no intentns to live...i jus wish i cd kill myslf cz i cnt live a lyff whr m unhappy...evn i wna be loved n cared,,understud by smone..smone to tel me dt m der for u...........but i am jus being told not to depend or rely..evn by my closest people.

[mishb]

I'm so sorry that you are going through this brokenangel.

Please don't give up on yourself. You are the most important person, not only to your mother, but.......to you.
You should try speaking to your mother. I know I would want my children to talk to me. If you can't speak to her, then please keep talking to us.

What dose of pred are you on? the steroids can cause these feelings that you have, as you know.
Are you on any other medications?

We/someone, is here for you, day or night.

[Debbie C]

Broken angel, I am so sorry u feel this way. Michelle is right,steroids,especially at a high dose make you feel awful and this disease can cause depression. I am sure your mother would want to know the pain you are going thru and maybe she can help. Just remember you are NOT alone anymore.And one day you won't feel so broken ,I promise..I've been there too.

[Dirty Don]

Welcome brokenangel...without your particulars, people with knowledge on here can't help you much. Please be more specific. Best...

[Alysia]

Dear Broken angel,
I am sorry for your pains and suffering. you have being through too much.
now you are not alone any more. we are all with you. holding you hands.
please share as much as you want to. I am sending you big warm hug

[Wegetarian]

Sorry to hear you are not feeling well. Have you been taking high doses of prednisone since 2006? What other medicines are you taking?

[brokenangel]

Hi frnds....m still hospitalised...feeling alon..ofcrs few of my frnds tyrnd up to meet bt m feeling hurt insyd dt despite leavi msgs thru his frnds so dat he cms to kno dt m hosptldsd n missing him..wanna meer him..he did nt cntct me back....m in a miserabl state...mom also kps cryin wen she sees me cry...drs hv dne s lumbar puncture on me.durn d proc my heart rate dropped. Hd to b gvn atropine. ...its paining like hell.cnt move about...