Natural or Homeopathic Remedies?

[maria garcia]

Ok, here goes, Im posting it. I want to know of any Natural Remedies for any of these horrible side effects of the meds, the pain of the muscles, the vasculitus, the cramps at night, fatigue, breathing, sinus's- ANYTHING.

Ive been doing some research and have found a few things Im just starting to try. Boosting my Calcium with Highly Ionized Coral Reef Calcium to balance my PH levels. I take Garlic supplements (I just always have) for general well being. I just started taking Flax Oil to boost my Omega 3's and help absorb the Calcium and Vitamin D better and just to boost my immune system in General. I think all Auto Immune Disorders can be reversed with the right regimen. Does anyone else have any thoughts?

I know we have all been told that Prednisone and all these other meds are the only solution, but has anyone tried ANYTHING else? There has to be an answer. We have to find it.

Anyone have any suggestions for nerve damage or nerve pain? Thats my next step. I make my own lotions and massage oils with all Organic and Natural ingredients and believe it or not, have a lotion that really gives my nerve pain in my feet some instant relief. Its amazing. A good friend of mine mixed her special blend of essential oils (which I call her nerve tonic) and I made a massage oil I use once a day and it has helped with the pins and needles. These of course arent cure all's but they do help. Does anyone have any other home remedies or found any research on things to at least EASE some of the side effects we are all going thru?

Im just curious. The more I research, the more I will share. Im on a mission I tell ya. I refuse to spend years on these medications to only find out WG has come back again. I just cant take it. There has to be a better way! I cant spend the rest of my life feeling like Quazimoto. I just cant.

So Im open for suggestions and comments. Please be nice!

THANKS!

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[JanW]

Maria -- I see that Sangye replied to you in another thread, but I also wanted to emphasize how dangerous it is to go down this road when dealing with vasculitis. We are already talking about a disease that affects a very small percentage of the population, is ultimately fatal if not treated and can do a great deal of damage if improperly treated. The really good news is that doctors do know what works to treat WG. Your daughter needs to follow the advice of a WG specialist and get on the road to recovery. She doesn't have the 'luxury' of attempting to treat the disease with natural remedies.

[Sangye]

Yup. Maria, start at the beginning of this thread and read down a few posts. I posted a lengthy explanation of why this is dangerous. I'm a holistic physician. If there were any chance of treating this naturally I certainly would be doing that. There isn't, so I'm not.

[Jules]

Sangye, I have no intention of giving up my meds, but is there ANYTHING you, or anyone else, have come across that can help sleep?

[maria garcia]

I appreciate all the replys, and I understand where everyone is coming from, but I do believe there is an answer to every question and that answer can be found in the foods we eat, the earth around us and natural products. I just think this disease is so rare, and so few people are diagnosed, that not enough research is done and not enough questions are asked. There is a cure, theres a cure for everything. Even Cancer. Just not everything has been found.














I know alot of people have just accepted that this is something you have to live with and deal with, and yes, that is true, but you should never give up researching and trying to find a better solution. There is always a way.

I let my doctors know every single thing I take, and although Ive researched alot of supplements, I dont just jump into taking them. Anyone can tell you to take something, but that doesnt mean they know what they are talking about. My best friend is in college right now for homeopathic medicine, and believe me, she has tried to get me to take a million different things, has every idea in the book, but Im not going to just start popping herbs and supplements and seeing which one sticks to the wall. lol. Really I was just looking for some ideas on some remedies for the side effects, the ailments, all that good stuff. I know no one has a cure or it would be all over this board!

My doctors have assured me thought that the garlic is fine, and the most its going to do is give me worse acid reflux. The things about the immune system- well thats another story. Ive talked to them about that, and they dont seem to have a problem with doing what I can to boost my immune system. Ive been told that the drugs are there to, yes, supress it, but you have to also boost your immunity and rebuild your sytem. The drugs supress the disease. If you kill off your entire immune system, THAT will kill you. Why else would we be told to eat healthy? Healthy food boosts your immune system. you have to replace the bad with good. At first, I read that Alpha Lipoic Acid helped with alot of cell regineration, and boosting immunities so I got a small bottle, took it to my doc, she said it should be ok. I took it for a week. Did some more research, and although I dont think its going to do harm, I dont think its the right thing to take RIGHT NOW. It also takes toxins and tries to illiminate them, but by doing this it passes thru your brain and cardio system some how- I dont remember now, but has something to do with the blood flow- and I just dont know if I want the drugs, the disease, and any toxins I have being pushed farther into my lungs, my blood, you know what I mean. So I stopped taking it.

Now I just stick to the Vitamins, flax oil, calcium and eating healthy. I do believe alot of this is based around inflammation. I also have lipitin resistance, have had it for years, and my body has always had an inflammation problem. I think that could have been what set it off. Eating healthy, then throwing it out of whack eating bad, then back to eating healthy- I just dont believe my body could handle it anymore.

I appreciate everyones concern, I really do. Its great to have a "family" behind me who has been there and knows whats going on. And trust me, I dont just jump on fads and try everything. I let my doctors know before I do a thing. They know everything Im taking, down to the name brands of the calcium and vitamins. There is a holistic doctor right by me im going to call just to see if he has even HEARD of this. I wouldnt even talk to someone who didnt. But its just not in me to accept that there is no other solutions. I just think they havent been discovered yet. If you accept there are no other options, thats like your saying your just waiting it out until it kills you. I cant do that! Theres new research and info being found everyday, so tomorrow, you never know, tomorrow may be the day someone says hey, "drinking lemonade everyday will cure wegeners!" lol.

you just never know.

Ive read alot of good things about colostrum.

[Deanne Hull]

that is an amazing piece of advice and shall copy and paste and send it to my family, thank you!!!!

[Sangye]

My advice is to be careful who you get advice from. You can do great damage to yourself by relying on internet info that anyone can post for a profit. There's a reason why it takes as long to become a holistic doctor as it does to become a medical doctor. It's every bit as complicated. I suggest you consult with one to get proper, individualized care.

[JanW]

I agree with Sangye, and also think that whether something can be treated naturally or not really isn't the issue. It's not as though there isn't treatment for this disease -- the choice isn't between unproven supplements and treatment with medications that cause tons of side effects or damage quality of life. There are many WG patients who have a high quality of life while at the same time taking immunosuppressive medications. I know that one of the hardest things as a new patient may be to realize that you need to be medicated for life, but it is better than the options for WG patients 40 years ago for sure.

[maria garcia]

ya no kidding, theyd call it weggie juice and say it was the miracle cure, only $129.95 for a 8oz supply! lol

I heard COLOSTRUM is very good! And Mila seeds. and probiotic and fish oils. Let me know when you try someting that is working

[shadow]

You mentioned chiropractor and accupuncture. What can they do? I have always assumed that we should avoid this. I'm down to 5 mg pred and pains and pinched nerves are showing up now. Am being sent to pain clinic but wonder if another option is worth looking into.
Shari