Wegie talent outlet

[windchime]

Excellent poem Lisa. Very poignant and to the point. Did you share it with your husband? It may help him to understand where you've been.

[BookNut]

Lisa, This is absolutely stunning! So beautiful, so painful, and SO descriptive of anyone with a chronic disease. It deserves a wider audience. At the very least, it should be its own post, so that more people on the forum will see it. It should be available to anyone with other kinds of chronic diseases. Somehow, I want this poem to go viral!! Youare a very talented writer, my friend!

[LisaT]

I'm humbled by these responses... Don't know if I'd feel comfortable sharing it with any wider audience. This forum feels very safe and non-judgmental, because I know that people understand, even if all of our stories are different there are commonalities... Until posting it here this was just a personal rant on my iPad... But I'm glad if it helps anyone else realize they're not alone in this experience...

[Michael Bell]

it is a very strong and thought provoking piece of work Lisa, this is the sort of stuff I hoped for when I started this thread. We may get a book out of it yet. And if we do anybody that wishes can publish anonomasly.
Mike

[Alysia]

I translated one of my little poems from Hebrew. please correct my English if needed to make it a better one.
I wrote it out of pains of body and soul, and out of endless lonelyness, sadness and despair. as you can see, there was no place that I could have brought my pains to.... now I have. here. thank you all for being here

Curfew
My Pain is being detained inside me,
Muted, screaming and wrestling,
Flickering but then cruelly – almost turn off
Etching on the walls of its dark prison
With no words…
Searching where… to find some exit….
But it is always being told: "not here"
My tears are also being arrested
With chains of control.
In one minute, the cables are ripping
Curfew just broke
But the pain is never loosening..

[LisaT]

Beautiful. You capture the feelings perfectly. Thanks for sharing this, and for your friendship and support. This made me cry because I'm sorry you have to deal with this pain... �� is it any better these days? I have a heating pad on my back and ice pack on my neck/ base of my skull as I type... I hope you're feeling ok!����

[BookNut]

I hope the pain for both of you is better. My respiratory issues do not cause me pain - just shortness of breath and extreme fatigue. But I fell hard when I was 18, and have had back pain ever since. And 4 years ago I injured my neck which resulted in the worst pain ever. I can empathize, because when the pain is bad enough, you just cannot think and you feel desperate to escape it. Hard to get your mind on anything else. Both the poems express that so very well. Writing is such a good way though of dealing with the pain...getting the inside pain out. Keep on writing and sharing! I am hoping for pain free days for all my friends here on the forum.

[pberggren1]

Jacquie, do you see a chiro and massage therapist regularly?

[BookNut]

Probably not as often as I should.....but I do see a chiropractor when things get bad. Was scared to death to see him when my neck was so bad....but he did wonders. My PCP is an integrated medicine doctor and has a chiro and massage therapist, acupuncturist etc. right in her group. Another good thing about prednisone is that when I am on it I get relief from the backache. Would rather put up with the backache, but it is generally best to look at things from the positive side!

[LisaT]

I'm noticing getting into a creative zone really distracts me from and helps me with pain and other symptoms. Mostly I'm drawing/doodling, and occasionally painting but I wrote a short poem today. I'm hoping others will keep sharing. I really like reading/ seeing everyone's stuff...

I want to be like water
Flowing gently to where I'm meant to be
No need to think or question or comprehend
Any obstacles or barriers along the way
I'd simply go around
Or take my time
Slowly, steadily cutting through stone as though sand
Or air
Taking myself and the debris I carry along with the current
Enveloping, lifting, and carrying the creatures I sustain
Quenching thirst
Refreshing spirit
Making waves


Being