User Tag List

Likes Likes:  0
Page 2 of 2 FirstFirst 12
Results 11 to 14 of 14

Thread: Positive Diagnosis Questions

  1. #11
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,896
    Post Thanks / Like
    Mentioned
    11 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by D.B. View Post
    i haven't seen anywhere a direct correlation btw sugar and flare ups but i had to stop drinking soda because i really do feel better when i cut back on sugar intake.
    I know for sure that too much sugar makes me feel like crap. This may have been true before I ever had Wegs, but now that I have it, it is more pronounced. It can definitely worsen my symptoms over the course of a day, which isn't the same as having a flare, but I wouldn't doubt that it could contribute to that if too much is consumed on a regular basis.
    Anne, dx'ed April 2011

  2. #12
    Join Date
    Nov 2013
    Location
    South Georgia
    Posts
    1
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I've just been diagnosed as borderline Wegener's and am looking for a rheumatologist who treats this in the S. GA/N. Florida area. My pulmonologist at Emory diagnosed me but I don't want to drive back and forth 200 miles. I'd like to find someone closer to me since I imagine I will be making frequent visits to the doctors.

  3. #13
    Join Date
    Oct 2011
    Location
    near Phx, AZ
    Posts
    1,761
    Post Thanks / Like
    Mentioned
    3 Post(s)
    Tagged
    0 Thread(s)

    Default

    Welcome Jeannie, hmmm, a borderliner...not sure what that is as there are soooo many levels of this disease. I assume you may mean a 'localized' WG perhaps. Anyway, if you have access to Mayo in Jxville, that shouldn't be far for you. I don't know the docs there, but Mayo generally treats AIs...I use the Phx Mayo...they have made my life much better thru their skilled efforts. Also, Phil, on here, knows a multitude of WG docs, etc. - he may have better info. Also, look at the map here to see if anyone else is in your area. Best of luck to you, ask any and all questions you may have...lots of caring and good experiential info on here.
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  4. #14
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,896
    Post Thanks / Like
    Mentioned
    11 Post(s)
    Tagged
    0 Thread(s)

    Default

    Welcome, Jeannie. I'm glad you found the forum, as it is the best place to be for anyone who might have WG. But I, too, question the term "borderline Wegener's"... I figure, either you have it or you don't, or they think you might but don't know for sure. Or maybe like Don says you have a fairly mild or limited case of WG so far... if so, keep in mind that can change. Maybe you could start a thread under New Member Introductions and give us more details about your symptoms, history, diagnosis or not, meds you are on, and anything else you would like to share. We are always here to listen and respond to anyone's concerns, and many of us have used this place to blow off a little steam now and then, as well! Good docs are important, too, and you could check this link : VF Medical Consultants to see which known specialists listed might be somewhat near to you. For many of us, this forum is as good a source of information and help as any doctor.
    Anne, dx'ed April 2011

Page 2 of 2 FirstFirst 12

Tags for this Thread

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •