Saddle-nose

[annekat]

Anne, for me it was VERY painful. I mean the change to the saddle figure.
I wonder if it can be changed significantly without pain ? maybe your change is minor, Anne, like the change I had few years ago.
maybe we should open a thread of saddle noses pics.... like the boogers one...
depressing issue

My saddle nose is similar in appearance to yours and to Phil's from pics I've seen of both of you. Yet Phil and I had no pain. Which is why I wonder if the pain was only from the saddle nose. Everything is related, though, for sure.

[Alysia]

My saddle nose is similar in appearance to yours and to Phil's from pics I've seen of both of you. Yet Phil and I had no pain. Which is why I wonder if the pain was only from the saddle nose. Everything is related, though, for sure.

maybe I am more "spoiled" and feeling pain when others have more tolerance...

[annekat]

Reading this it does seem to be pretty much a trend that if you have sinus issues that you eventually end up with saddle nose. I "think" my ent said it's from the pred use.

My saddle nose developed BEFORE I was ever treated for Wegs, so I don't think it could have been from the pred. Although I did have some brief pred treatments pre Wegs dx. Also, it would be interesting to do a poll on how many people with sinus involvement got saddle nose eventually and how many haven't. I don't believe that everyone with such involvement will eventually get it. I think the saddle nose occurs because of extreme disease activity eating away at the septum, and that those who are getting continual, proper treatment and have brought the level of disease activity under control, may easily avoid getting a saddle nose. Of course, a later flare could then cause it to happen if not caught in time or if it doesn't respond to treatment.

[annekat]

maybe I am more "spoiled" and feeling pain when others have more tolerance...

Oh, I don't know. My dentist did tell me I have a high tolerance for pain. But I've read others on here who didn't even know they had a saddle nose until someone pointed it out, and I don't remember them mentioning a lot of pain beforehand. Everyone is different, and if you think that all the pain you had was in conjunction with your saddle nose developing, then it probably was. But it may not be the same for everyone.

[mishb]

Michelle, if I remember right, you do have the saddle, and it isn't getting any worse, yet you do have the constant changes, pains, and contortions like Nikki does. Which makes me wonder if those changes are directly related to the saddling of the nose at all. I just have the saddle without any significant pains or other daily changes. I'm not sure if it has gotten any worse over time, but if so, only very slightly.

Anne, I don't have saddle nose.

It's all of the insides that have collapsed to the point that there is basically no airway for me to breathe through one nostril, and the other nostril - very minimal due to crusting etc.........I am therefore, a mouth breather.
There are changes to the shape and size of my nose from the outside but it has not saddled. The bone is very strong (according to ENT) and will not collapse.

They say that they cannot (or will not) do any internal nose repairs until I am med free.

[annekat]

Anne, I don't have saddle nose.

It's all of the insides that have collapsed to the point that there is basically no airway for me to breathe through one nostril, and the other nostril - very minimal due to crusting etc.........I am therefore, a mouth breather.
There are changes to the shape and size of my nose from the outside but it has not saddled. The bone is very strong (according to ENT) and will not collapse.

They say that they cannot (or will not) do any internal nose repairs until I am med free.

Michelle, I'm glad you don't have the saddle, but am unhappy about all your internal nose problems and breathing issues. Although I have the saddle, I have no trouble breathing. So I feel very lucky in that respect. I hope you can become med free so the repair work can be done. I'd certainly think anyone's insurance would cover such a situation, though I know that might be less of an issue there than here.