exercise....a nasty word?

**coffeelover** · 07-30-2009, 05:33 AM

In the very good interest of creating new threads....I have one.

I have been trying to up my exercise a bit by adding to my regular daily morning walk a 10-15 minute short exercise in the evenings. I am somewhat discouraged as I am not losing the weight at all (still on pred) by adding the additional exercise. My question is:
Am I expecting too much too soon?
Should I really be exercising this much? (although this is nothing compared to my before WEGS diagnosis.)
Any advice out there?

feeling fat and blue
LIsa Coffeelover

**Luce** · 07-30-2009, 06:29 AM

Lisa

I have been told that exercise is incredibly beneficial as long as you listen to your body and don't push it too far. So as long as you're not suffering as a result of your efforts then I say keep it up!

I'm going to the gym 3 times a week now - I do a step aerobics class for an hour and then two sessions on the cardio vascular equipment.
I'm only on 7.5mg of pred and I'm still not seeing any improvement, I've been told I may not lose any weight until I can get off the pred completely.
However I like the routine I've got into and if I can keep it up hope it will show some benefit eventually.

My only advice is to just keep at it!

**Jack** · 07-30-2009, 08:16 AM

I just about manage to walk to my car.

**Sangye** · 07-30-2009, 08:22 AM

Exercise does a lot for you, even if you're not losing weight. As long as you're not overdoing it, keep going. You're keeping some muscle even if you can't see it. And your body is circulating blood in and garbage out, which promotes healing. Lots more good stuff going on that you'll never see on the outside.

Lisa, even if you feel fat and blue (which I totally understand), at least you're not Violet Beauregarde from Willy Wonka. She was the one who turned blue and inflated, and the Oompa-Loompa's had to roll her away to be juiced. Keep your chin up, girl. As long as no one's rolling you away, you're doing okay.

**Sangye** · 07-30-2009, 08:24 AM

I'm in the same kind of shape, Jack. It's been 3.5 yrs since I even walked my dogs around the block. But the pool is helping. (Speaking of which, have you started splashing around yet? Hmmmm?)

**Jack** · 07-30-2009, 08:39 AM

....

**Sangye** · 07-30-2009, 08:46 AM

'Nuff said.

**Martin Thomas** · 08-19-2009, 10:44 PM

Like Luce I've embarked on an exercise regime and it's had a very beneficial effect. Mine was primarily due to getting a new dog (Newfoundland) so I simply 'had' to get out walking. I've gone from a few yards to a few miles in 4 months and lost 20kg in the process. I still have bad days but during my last consultation with Dr David Jayne and Dr Sivasothy at Addenbrooke's, Cambridge, UK both were highly complimentary and said they believed it had made a huge difference to my recovery. They also suggested they have evidence that physical fitness can contribute to supressing the disease. Certaily losing weight has helped as I need less energy. I have a severe stenosis of the right manin bronchus so anything that means I need less oxygen makes life easier.

However, I am aware that for many WG sufferers it must seem like an almost impossible task. I know I did but somehow I managed to get started - little and often to begin with then began to stretch out the exercise to where I'm at today. Motivation is clearly different for all of us but when you're desperate then it's amazing what you'll tollerate!

**capabayan** · 08-19-2009, 11:00 PM

Originally Posted by Martin Thomas

However, I am aware that for many WG sufferers it must seem like an almost impossible task. I know I did but somehow I managed to get started - little and often to begin with then began to stretch out the exercise to where I'm at today. Motivation is clearly different for all of us but when you're desperate then it's amazing what you'll tollerate!

So true Martin!! For me, the motivation is the hardest part of all... and yet I feel like such a heel always saying "no I don't feel like exercising today." But it's too true sometimes!! And then a day stretches into a week... or a month... and it's so hard to get back into a routine with the walking. Argh.