Hi from NJ

[mdjazz01]

Tom in NJ
I too saw Dr Spiera & he recommended Rutax treatment. Just wondering who your other drs. are? I live near Manhatten and need a new rhemey and ENT and any other dr. I might need in the future. HOpe your still doing well.
Mdjazz

[tkd7]

Tom in NJ
I too saw Dr Spiera & he recommended Rutax treatment. Just wondering who your other drs. are? I live near Manhatten and need a new rhemey and ENT and any other dr. I might need in the future. HOpe your still doing well.
Mdjazz

Hi-
Just seeing this, I haven't been to this thread in a while. I'm doing really well.
I live in Morris County in NJ and all my docs are in the Morristown area. I can tell you about my rheumy and ENT if you want some advice.
Hope all is well.

[tkd7]

Well it's March, time for a retest on my nerve conduction studies and bloodwork. I'll see how the conduction study goes.

So far the bloodwork - PR3 still high - 71.5 - sed rate normal - urinalysis normal.

Saw my rheumy last week and she said I'm her healthiest patient.

Here's hoping for the same evaluation for everyone here!

[mishb]

Great news on being a healthy patient, Tom.

Good luck on the nerve studies

[tkd7]

Great news on being a healthy patient, Tom.

Good luck on the nerve studies

Thanks Michelle!!

[Alysia]

good luck Tom. please update us

[tkd7]

Happy news to share - my nerve EMG studies came back improved over last fall. My nerve response in my legs was normal and in the arms showed only signs of carpal tunnel in both hands. Even better is that I actually feel better, I can tell that things are different from last year. Lungs sound normal, urinalysis is normal.

I still have elevated PR3 in my ANCA panels, and with every test the number gets larger.

My rheumy suggested another follow-up with Dr. Spiera, but I didn't see the point right now. I got my rheumy again to say that I'm the healthiest patient she has and I made her give me a high five. She is actually baffled when she sees me, but I'm OK with that. So I'm sticking to my New Year's Resolution - I'm fine except for one blood test that is wonky.

[tkd7]

I've been away from the forum, but more news to share.

I saw Dr. Spiera today. My recent EMG tests were back to normal. Normal function in my legs, slight carpel tunnel syndrome in my hands, probably from office work. My labwork is good; although my PR-3 is 56, so still not close to normal but lower than any of my previous lab results.

Dr. Spiera said it was the best he has ever seen me and he is continuing to recommend the watchful waiting and said that in his mind I don't have this illness right now.

I'm really happy; for the last year and a half I feel like I've been waiting for the time bomb to go off. So far, it is just ticking.

So other than a wonky blood test result things are good. Thanks for listening, it is hard for others outside of this illness to really understand.

[Pete]

That's great news, Tom!!

[BookNut]

Very happy to hear the good news!!